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Pat’s NF Fundraiser Walk

02 February 2021

Patrick, who lives in the Leamington area, was diagnosed with Neurofibromatosis Type 2 (NF2) a long time ago. He’s used to facing barriers in life as his NF2 has caused a number of benign tumours to grow across his body, which has unfortunately led to his mobility slowly reducing.

Despite Patrick’s daily challenges, he decided that he wanted to help others that are affected by Neurofibromatosis. He decided to start his own fundraiser, with the challenge of walking 14 miles over 7 days, all whilst on crutches – a Herculean effort! In his words, he wanted to “Raise awareness of the challenges people with physical disabilities experience in day to day life and so I hope even just a few people recognise that people can be struggling with a lot more than what they show on the surface."

"I constantly heard people complaining about how they could no longer go out and see friends or go to the pub/clubs and so on. It made me realise that some people do not realise that those with physical difficulties experienced those exact feelings every day before the lockdowns and I hope to raise awareness of those challenges as well as raise some funds to help people growing up with the same condition I have had my entire life."

Tune in to see Pat’s story on BBC Midlands -

Pat walked in a different location in the Leamington area each day with friends and family from his support bubble.

Day 1 – Southam

Braving the snow & The first leg of his challenging walk was in his hometown in Southam accompanied by his sister Hannah and mum.

Day 2 - Jephson’s Gardens

Taking on the cold yet again alongside his brother, sister and mother “it was a chilly day out today but having my family with me today was comforting and pushed me to finish the 2 miles today.”

Day 3 – Completing another 2 miles in Newbold Comyn

Day 4 - Leamington Parade

Over halfway done, the challenge continues! “feeling absolutely knackered but looking forward to the next one.”

Day 5 - Foundry Wood

Patrick is used to facing adversity. "I walked around a different sort of environment today. Mainly woodland areas" which obviously took more strength to master.

Day 6 - Newbold Comyn

Only 2 miles to go! Tackling the mud and the rain with his friend in Newbold Comyn today.

Day 7 - Victoria Park

Reaching the finish line today to a huge round of applause!

Even though “It was quite difficult getting through some of the days.” Patrick managed to complete his fundraising challenge saying, “the messages and support I have received from so many people spurred me on to pick up my head and push through the challenge.”

Support Patrick and the 26,500 affected by NF in the UK.

Read Patrick's story in his own words


Share Pat's BBC interview with your friends and family on social media by copying the following -

Support the 26,500 people affected by Neurofibromatosis, like Patrick. Pat shares his story with the @BBC, sharing his motivation for starting his fundraiser and why he wanted to help others affected by NF. Tune in here -

“It’s mind-blowing to see so much money come in and so much support from people. It couldn’t have gone better, to be honest.”


Media in Support of Patrick's fundraiser and the Nerve Tumour Community in the UK

Diana Barran Tweet 11.02.2021

Lords Minister DCMS and Min for Civil Society


BBC Midlands Evening News 01.02.2021


Leamington Courier 02.02.2021


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Leamington Observer 27.01.2021


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