Nurse’s Conference 2019
11 October 2019
Nurse's Conference 2019
This week we had our yearly specialist advisor meeting with members of the Nerve Tumours UK office and board in London. In attendance were Carolyn Smith, Ruth Drimer, Samantha Gaden, Helen Tomkins, Kirsty Bready, Rachel Jones and Melanie Murrell.
The aim of the meeting was to exchange and update our specialist NF nurses on what is happening in the field, what areas are geographically covered and what new projects are being initiated e.g. iNForm for schools.
This meeting helps us as a charity better understand how we can support our specialist nurses and those affected by NF. We are extremely grateful for the support that our Support Specialists are providing to our community day in day out.


Filter News

Andrew’s NF1 Story
Read about Andrews inspirational NF1 story and how he wants to inspire others to achieve their goals!
Read More
Dexter’s NF Documentary Project
Dexter shares his motivations for taking on his NF documentary project & find out how you can watch it
Read More
World NF2 Day 2021 Emily Owen Member of our Board of Trustees Takes over our social
Read More
A Big Thank You to all our Garden Runners!
Find out how our Garden Runners got on this World Neurofibromatosis Awareness Day - May 17 2021
Read More
Centre for Appearance Research (CAR) - Somali Heritage & NF Study
If you are from Somali heritage and have NF, the Centre for Appearance Research (CAR) want to hear from you.
Read More
Shine A Light 2021 Success!
Another incredible year, 92 buildings lighting up blue to Shine a Light on Neurofibromatosis as part of this year’s campaign
Read More
Living Different: Patricks’s NF2 Blog
Read his attempt to build people's understanding of the challenges with disabilities
Read More
Beth’s Novasper Online Dog Show 2021
Find out how you can get involved in this year's fluffiest and loveable online dog show!
Read More
Christian’s Story
Christian's Mum, Ellie, share's their journey with NF & why they decided to get involved with this year's Garden Challenge!
Read More