Nurse’s Conference 2019
11 October 2019
Nurse's Conference 2019
This week we had our yearly specialist advisor meeting with members of the Nerve Tumours UK office and board in London. In attendance were Carolyn Smith, Ruth Drimer, Samantha Gaden, Helen Tomkins, Kirsty Bready, Rachel Jones and Melanie Murrell.
The aim of the meeting was to exchange and update our specialist NF nurses on what is happening in the field, what areas are geographically covered and what new projects are being initiated e.g. iNForm for schools.
This meeting helps us as a charity better understand how we can support our specialist nurses and those affected by NF. We are extremely grateful for the support that our Support Specialists are providing to our community day in day out.
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Filter News
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We know 26, 500 people who need your help
To expand our Specialist Neurofibromatosis Network, we need to continue raising awareness of what we do
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The New National Helpline
The National Helpline is expanding to Monday, Wednesday and Friday, from early October
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK_office_team__Sam_370x280_800_600_s_c1.jpg)
London Marathon 2022
Congratulations to our 2022 London Marathon runners - thank you from the NTUK team
Read More![](https://nervetumours.org.uk/images/made/images/common/Hannah_1_370x280_800_600_s_c1.jpg)
Hannah’s NF1 story
9 year old Hannah is running the Junior Great North Run, so other children with NF can also have access to doctors & nurses
Read More![](https://nervetumours.org.uk/images/made/images/common/Sam_Gaden_marathon_2_370x280_800_600_s_c1.jpg)
Sam’s Marathon
Sam, our Specialist NF Nurse for Merseyside & the North West, is running the London Marathon - her very first Marathon!
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NF Patients Community Day
The NF Patients Community Day is on Sunday 9th October 2022 - register to attend virtually
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Appearance, Identity & Law workshop
Appearance, identity & law workshop at Queen Mary University London School of Law
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Alfred the Pirate
Seven year old Alfred the Pirate takes NF1 in his stride, and is supported by Specialist NF Nurse Mel
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