Helpline 07939 046 030

Nurse’s Conference 2019

11 October 2019

Nurse's Conference 2019

This week we had our yearly specialist advisor meeting with members of the Nerve Tumours UK office and board in London. In attendance were Carolyn Smith, Ruth Drimer, Samantha Gaden, Helen Tomkins, Kirsty Bready, Rachel Jones and Melanie Murrell.

The aim of the meeting was to exchange and update our specialist NF nurses on what is happening in the field, what areas are geographically covered and what new projects are being initiated e.g. iNForm for schools.

This meeting helps us as a charity better understand how we can support our specialist nurses and those affected by NF. We are extremely grateful for the support that our Support Specialists are providing to our community day in day out. 

Filter News

Filter by Date

Carers Rights Day. Diane’s Story

Find out more about Diane's life as a carer and how more should be done for unpaid carers in the UK

Read More

Sarah’s Story

Sarah has NF1 and works full time for the NHS check out her intriguing story here

Read More

Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

Read More

Visible Difference Equality Law Research: summary of findings

Find out more about the results here:

Read More

The Galloway Family and their “amazing” four year old Ruby

Have a read about the incredibly brave young Ruby Galloway (NF1) and check out their previous and future fundraiers.

Read More

“Framing the face: History, Emotion, Transplantation” a blog from James Partridge

Find out more about the blog and what is concerns here:

Read More

A Spooktacular Halloween day for NTUK

Find out more about the wonderful fundraising event here:

Read More

Nicks Triathlon in Support of his daughter Eilidh

Find out more about Nick's Triathlon and his daughter's experiences with NF1 here:

Read More

An Adolescent Support Day for teenagers with NF1

Bridie Windsor is a Deputy Clinical Nurse Specialist who has organised a support day for teenagers with NF1. Read more here:

Read More