Noah’s Inspirational Fundraising Story
03 March 2020
Noah was diagnosed with Neurofibromatosis type 2 after being quite poorly when born. Over the years he has beaten the odds and become a truly inspirational individual – helping others along the way!
Noah’s fundraising journey began when he was 7 or 8 years old and he was visiting the Serrenu (sparkle) Children’s Centre in Wales for physio when he overhead people talking about funding cuts.

He was mortified to learn that funding would be reduced for the centre and that many children and young people with disabilities and developmental difficulties would no longer benefit from the vital supportive care, treatment and activities.
From then on he has made it his passion to fundraise for people in need - completing many runs/ walks and bake sales for various children’s charities.
This year is the fourth year that Noah will be running his Easter egg appeal which he has aptly named “Make Someone Smile” – his ethos is that one small good deed is all it takes to make someone smile.

One of Noah’s chosen charities to donate to is Woman’s Aid, Noah selected them after researching and finding out that there are so many children without a place to call home or fleeing violence and finding this very upsetting.
Noah other selected charity he donates to is Llamau. After recently turning 13 and realising that at 16 support for children is dramatically reduced and many youngsters who have had support before no longer have the same support and end up on the street.
NF2 is a very complex condition but not many people are aware of it, we need to improve awareness of Neurofibromatosis type 2 to improve funding for a cure. It’s people like Noah who even though they have the odds stacked against them they remain strong and do incredible things for other people – spreading joy wherever they can!
Filter News

Jane Frances
Here Jane Frances tells us how findings from psychological research can help parents and teachers of children with NF
Read More
Sarah’s Story
Sarah has NF1 and works full time for the NHS check out her intriguing story here
Read More
Laura’s Story
Read about Laura's experience of undergoing surgery to remove a tumour from her spine here:
Read More
Visible Difference Equality Law Research: summary of findings
Find out more about the results here:
Read More
The Galloway Family and their “amazing” four year old Ruby
Have a read about the incredibly brave young Ruby Galloway (NF1) and check out their previous and future fundraiers.
Read More
“Framing the face: History, Emotion, Transplantation” a blog from James Partridge
Find out more about the blog and what is concerns here:
Read More
A Spooktacular Halloween day for NTUK
Find out more about the wonderful fundraising event here:
Read More
Nicks Triathlon in Support of his daughter Eilidh
Find out more about Nick's Triathlon and his daughter's experiences with NF1 here:
Read More
Tom GK- Hearing Loss: The Musical
Find out more about the musical and how you can secure your ticket here
Read More