Noah’s Inspirational Fundraising Story
03 March 2020
Noah was diagnosed with Neurofibromatosis type 2 after being quite poorly when born. Over the years he has beaten the odds and become a truly inspirational individual – helping others along the way!
Noah’s fundraising journey began when he was 7 or 8 years old and he was visiting the Serrenu (sparkle) Children’s Centre in Wales for physio when he overhead people talking about funding cuts.

He was mortified to learn that funding would be reduced for the centre and that many children and young people with disabilities and developmental difficulties would no longer benefit from the vital supportive care, treatment and activities.
From then on he has made it his passion to fundraise for people in need - completing many runs/ walks and bake sales for various children’s charities.
This year is the fourth year that Noah will be running his Easter egg appeal which he has aptly named “Make Someone Smile” – his ethos is that one small good deed is all it takes to make someone smile.

One of Noah’s chosen charities to donate to is Woman’s Aid, Noah selected them after researching and finding out that there are so many children without a place to call home or fleeing violence and finding this very upsetting.
Noah other selected charity he donates to is Llamau. After recently turning 13 and realising that at 16 support for children is dramatically reduced and many youngsters who have had support before no longer have the same support and end up on the street.
NF2 is a very complex condition but not many people are aware of it, we need to improve awareness of Neurofibromatosis type 2 to improve funding for a cure. It’s people like Noah who even though they have the odds stacked against them they remain strong and do incredible things for other people – spreading joy wherever they can!
Filter News

OneMoreNurse joins the NTUK team in Leeds
We're delighted to announce our new Specialist NF Nurse for Leeds, find out more
Read More
The NTUK running team kick starts 2021’s running season in this year’s Asics 10k!
Check out the year's first major running event - see how our NTUK running team got on!
Read More
Alex’s 12 months of Running
Alex has completed his incredible 12 months of running for NTUK, totalling a whopping 80km – see how he got on!
Read More
Colin’s West Highland Walk for NF
Colin has completed his epic journey across the highlands to raise awareness for our NF community. See how he got on.
Read More
To Infinity & Beyond!
Cameron takes on an incredible quest for NF - 34 miles running, 34 miles cycling, 34 miles rowing and a 1 mile walk with Roo!
Read More
Runderpants Is Back!
Take part in an event that's absolutely pants! Runderpants is a fun run, in your pants, for our NF community!
Read More
TABI (Teen Appearance and Body Image) - CAR Research Study
Find out how you can take part in the Centre for Appearance Research's study for Young People
Read More
Nerve Tumours UK Challenge Yourself Week
Find out how you can get involved this summer with some of the biggest and greatest challenge events in the UK
Read More
Andrew’s NF1 Story
Read about Andrews inspirational NF1 story and how he wants to inspire others to achieve their goals!
Read More