Helpline 07939 046 030

Nicks Triathlon in Support of his daughter Eilidh

22 October 2019

Nicks Triathlon in Support of his daughter Eilidh

Nick Frost is testing his body to the limit by taking on the "Outlaw" Iron Distance triathlon in support of his daughter Eilidh who has NF1. Here he tells us about Eilidh’s story and his reasons for taking on such a formidable challenge.

Eilidh has just celebrated her 10th birthday last weekend and is an amazingly beautiful, caring and happy child.

Around 5-6 years ago during a visit to the doctors, for an unrelated check-up, the doctor recognised some marks on her body which turned out to be café au latte marks. We call them Giraffe Spots as Eilidh is mad on Giraffes!

Quite quickly after this appointment we visited the genetic clinic at Aberdeen Royal Infirmary who have been amazing, followed by several visits to other departments. Eilidh was diagnosed with NF1 and both me and Carol were checked and cleared of the genetic condition.

The appointments have continued yearly ever since and thankfully apart from some mild behavioural issues, which could be classed as children being children, no other symptoms have been found and Eilidh leads a very happy life.

We do worry and as she is approaching a critical age in her life we often over analyse daily behavioural changes and each year we have to discuss with teachers some of her less productive features of Eilidh's behaviour such as lack of attention and focus and forgetfulness to ensure they understand the common behavioural differences often exhibited by children with NF.

"Apart from some mild behavioural issues, which could be classed as children being children, no other symptoms have been found and Eilidh leads a very happy life. "

– Nick

This is where the Nerve Tumours UK website has helped immensely. The help sheets and information have time and again proven invaluable for us as parents and our families and other important people such as the teachers in Eilidh's life.

Therefore, to give something back I decided I wanted to raise some money for the charity and set about finding myself a challenge.

We recently had a holiday in France, near Nice, and on arriving back in Nice to fly home I noticed the Nice Ironman was the following day. As an already keen cyclist but someone who has never swam distances nor a comfortable runner, the idea of an Ironman scared me, yet the prospect excited me. This would indeed be a worthy and serious challenge for me at 45!

Before committing to the challenge, I joined a local triathlon club with coached swimming lessons to see if I was capable of distance swimming and after a few sessions decided this is something I can work towards. I have since booked my place on the 'Outlaw' Iron distance triathlon which will take place on the 26th July 2020 in Nottingham.

The swim is 3200m followed by a 180km bike ride followed by a full marathon, each of which scares me stiff never mind completing all three one after each other! I have started training which is going well although my poor knees are screaming for me to stop, having just opened a Just Giving account I am now committed to the challenge. 

Everyone at Nerve Tumours UK would like wish Nick the best of luck in his triathlon and thank him for his all his efforts in fundraising for our shared vital cause!

"This is where the Nerve Tumours UK website has helped immensely. The help sheets and information have time and again proven invaluable for us as parents and our families and other important people such as the teachers in Eilidh's life. "

– Nick

Filter News

Filter by Date
Category
Reset

Diana’s 1 Month of Rowing for Neurofibromatosis

Diana is taking on an epic 150k rowing challenge - 5k per day to support her daughter Ellie & our NF community

Read More

The NTUK running team kick starts 2021’s running season in this year’s Asics 10k!

Check out the year's first major running event - see how our NTUK running team got on!

Read More

Alex’s 12 months of Running

Alex has nearly completed his incredible 12 months of running for NTUK, totalling a whopping 80km – see how he got on!

Read More

Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

Read More

Colin’s West Highland Walk for NF

Colin has completed his epic journey across the highlands to raise awareness for our NF community. See how he got on.

Read More

Kian’s NF2 Blog

Kian shares his NF2 journey and his inspirational path - training to swim in the para-olympics

Read More

To Infinity & Beyond!

Cameron takes on an incredible quest for NF - 34 miles running, 34 miles cycling, 34 miles rowing and a 1 mile walk with Roo!

Read More

Runderpants 2021/22 Is Back!

Take part in an event that's absolutely pants! Runderpants is a fun run, in your pants, for our NF community!

Read More

TABI (Teen Appearance and Body Image) - CAR Research Study

Find out how you can take part in the Centre for Appearance Research's study for Young People

Read More