NF1, Plexiform Neurofibromas Market Research Study
04 May 2020
NF1, Plexiform Neurofibromas patient voice study, paid market research.

The purpose of the research is to help our sponsor, a pharmaceutical company, better understand how they can support people with NF1 (neurofibromatosis type 1) and PN (plexiform neurofibromas) and their caregivers. To achieve this, we would like to understand the journey yourself/the person you care for has been on in living with NF1 with PN; with the ultimate goal to help people like yourself/the person you care for in the future.
We would like to conduct a few interviews via video-call with parents/ caregivers, plus a few ‘homework’ exercises. Your total involvement will take approx. 90 minutes.
You will receive a financial reward for your participation.
Any information you provide us with will be treated confidentially and will be completely anonymous.
Taking this opportunity to have your voice heard would greatly help us further our research, and your participation would be hugely appreciated. If you want to participate or have any questions, please contact me, Jason Seymour, at Adept Field Solutions Ltd. by email Jason.seymour@adeptfield.com or call this number 0203 432 8217
More information about Adept Field Solutions can be found here: www.adeptfield.com
Many thanks in advance for your participation.
Market Research PDF
Filter News

Jo’s 160 Mile walk for NTUK!
Read Jo's Story as she prepares to take on a 160 mile epic walking challenge for Nerve Tumours UK.
Read More
NF2 & Identity Research Study
If you have NF2, Suzi want's to hear from you! Find out more about her research study relating identity & NF2
Read More
Challenge 100 – Everyone’s invited
Take on 100 of anything you can think of and fundraise to support our NF community!
Read More
A very “Happy Easter” to you all!
A message from Karen, our Charity Director, wishing you all a very Happy Easter!
Read More
Stuart & William’s Story: Turning blue for World NF Month
Check out Stuart & William's creative fundraiser for World Neurofibromatosis Awareness Month
Read More
Coordinated Care of Rare Diseases Study at UCL
Find out the results to the Coordinated Care of Rare Diseases Study at UCL
Read More
Who is exempt from wearing a face mask? UK exemptions rules explained - and how to get a hidden disabilities exemption
Find out the up to date information on face mask rules in your area
Read More
Carers Rights Day. Diane’s Story
Find out more about Diane's life as a carer and how more should be done for unpaid carers in the UK
Read More
NF1 PN Impact on Patients’ and Caregivers’ Lives
If you have NF1 with plexiform neurofibromas or you care for someone with NF1 PN help shape future healthcare support
Read More