NF1, Plexiform Neurofibromas Market Research Study
04 May 2020
NF1, Plexiform Neurofibromas patient voice study, paid market research.

The purpose of the research is to help our sponsor, a pharmaceutical company, better understand how they can support people with NF1 (neurofibromatosis type 1) and PN (plexiform neurofibromas) and their caregivers. To achieve this, we would like to understand the journey yourself/the person you care for has been on in living with NF1 with PN; with the ultimate goal to help people like yourself/the person you care for in the future.
We would like to conduct a few interviews via video-call with parents/ caregivers, plus a few ‘homework’ exercises. Your total involvement will take approx. 90 minutes.
You will receive a financial reward for your participation.
Any information you provide us with will be treated confidentially and will be completely anonymous.
Taking this opportunity to have your voice heard would greatly help us further our research, and your participation would be hugely appreciated. If you want to participate or have any questions, please contact me, Jason Seymour, at Adept Field Solutions Ltd. by email Jason.seymour@adeptfield.com or call this number 0203 432 8217
More information about Adept Field Solutions can be found here: www.adeptfield.com
Many thanks in advance for your participation.
Market Research PDF
Filter News

Benjamin’s NF1 story
11 year old Benjamin has NF1 and is the inspiration for his family's fundraising
Read More_3_800_600_s_c1.jpg)
Lynne Highy joins our team of Specialist NF Advisors
Read all about the newest addition to our team.
Read More
NF Academy 2025: Georgia’s Blog
NTUK ambassador Georgia Baum shares her transformative experience of attending the NF Academy 2025 in Barcelona
Read More
Craig’s story
Craig describes his mosaic NF2 related hearing loss, and how a cochlear implant & hearing aids have changed his life
Read More_6_800_600_s_c1.png)
George’s Schwannoma Story
George shares his experience of being diagnosed with a schwannoma and why he's lacing up for NF awareness.
Read More_6_800_600_s_c1.png)
JoJo’s NF1 Story
JoJo shares how her NF1 journey has affected her; how her pain and loss have become foundations of courage and resilience.
Read More
Tristan’s Story: Hope & Resilience
Discover Tristan's NF1 story: Finding home, hope & the power of sport.
Read More
10 mile walk for Lily
Read more about the 10 mile sponsored walk for Lily, organised by Claire, with her nursery team, family & friends taking part
Read More_2_800_600_s_c1.jpg)
NF & Sport: Joy’s Journey
Find out more about the impact of sport on Joy's NF1 journey & how running changed her life forever.
Read More