NF Said

05 February 2021

Daisy is taking on a 38-mile running challenge for her sister Millie who was diagnosed with NF Type 2 roughly two years ago, after a number of misdiagnoses. She wants to run one mile for each person who is diagnosed with NF Type 2 each year – a self-proclaimed non-runner she will be lacing up her running shoes throughout the month of February to raise funds in support of her sister.

Daisy and Millie are best friends and despite a five-and-a-half-year age gap, they both have a love of netball. Millie’s Neurofibromatosis has knocked her confidence recently but her sister Daisy was there to pick her up.

“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”

Daisy wants to raise awareness of NF Type 2 so more people understand the difficulties and challenges people with Neurofibromatosis face in their day to day life.

Help support Daisy on her running challenge

Donate

One More Nurse Appeal Press Release

Have a read of our #OneMoreNurse appeal press release here:

Recent Research from DR Shruti Garg

Find out more about some of the recent research carried out by DR Shruti Garag

Advisory group of parents needed to help shape future research

Maia Thornton is a PhD student looking for an advisory group of parents who's child has an appearance altering condition

Olivia’s Story

Olivia is an enthusiastic and determined young girl. Have a read of her inspiring story here!

The Big Lottery Fund pays for 2 Patient Info Days

Nerve Tumours UK receives Lottery funding

New research into non-discrimination law

Durham University is looking for participants who look different due to their health complications. such as NF.

Letter from our new Chair

A letter detailing the vision of our new chair, and the future of the charity.

Launch of Nerve Tumours UK

Following a major strategic review, the Neuro Foundation charity is now known as Nerve Tumours UK.

NF1 research award first for UK consultant

Dr Shruti Garg is the first non-US resident to receive NF1 $555,000 research award.

NF Said

“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”