NF Said

05 February 2021

Daisy is taking on a 38-mile running challenge for her sister Millie who was diagnosed with NF Type 2 roughly two years ago, after a number of misdiagnoses. She wants to run one mile for each person who is diagnosed with NF Type 2 each year – a self-proclaimed non-runner she will be lacing up her running shoes throughout the month of February to raise funds in support of her sister.

Daisy and Millie are best friends and despite a five-and-a-half-year age gap, they both have a love of netball. Millie’s Neurofibromatosis has knocked her confidence recently but her sister Daisy was there to pick her up.

“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”

Daisy wants to raise awareness of NF Type 2 so more people understand the difficulties and challenges people with Neurofibromatosis face in their day to day life.

Help support Daisy on her running challenge

Donate

Tate’s Shine A Light Bikeathon

Tate's 4th NTUK fundraiser was a Shine A Light Bikeathon, having learnt to cycle in just 3 weeks!

Access to your GP

We want to hear from you… Help us improve services by completing a quick survey

London Marathon 2024 Team NTUK

Thank you and congratulations to Team NTUK for their marathon effort

Thomas’ NF1 story

Thomas describes growing up with NF1, supporting Liverpool FC and taking on challenges with support from his wife

Meet Jessica, new Specialist NF Nurse

Jessica will work with Specialist NF Nurse Helen Tomkins, supporting families across Devon and Cornwall.

Rare Disease Day 2024

Read our update on the events and meetings NTUK attended to help raise awareness of NF

Johnathan’s story

Johnathon's family are spreading awareness of the importance of attending health checks and advocating for vulnerable people

Jen’s NF1 story

Jen praises the great support received since her NF1 diagnosis, allowing her to thrive & achieve a 1st class degree.

Charlotte & Evie’s story

'Sticker Queen' Evie is 4 years old and was diagnosed with NF1 after tests for a 'lazy eye'.

NF Said

“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”