NF Said
05 February 2021
Daisy is taking on a 38-mile running challenge for her sister Millie who was diagnosed with NF Type 2 roughly two years ago, after a number of misdiagnoses. She wants to run one mile for each person who is diagnosed with NF Type 2 each year – a self-proclaimed non-runner she will be lacing up her running shoes throughout the month of February to raise funds in support of her sister.
Daisy and Millie are best friends and despite a five-and-a-half-year age gap, they both have a love of netball. Millie’s Neurofibromatosis has knocked her confidence recently but her sister Daisy was there to pick her up.
“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”
Daisy wants to raise awareness of NF Type 2 so more people understand the difficulties and challenges people with Neurofibromatosis face in their day to day life.
Help support Daisy on her running challenge
Filter News
Deacons Marina’s fun filled fundraiser for NTUK
Find out more about the successful and well received fundraising event here:
Read MoreLive Wrestling in aid of Nerve Tumours UK!
Find out more about the brand new unique funraising event here:
Read MoreTalking about Neurofibromatosis A Guide for Teens
A new brochure aimed at helping teens with NF has been released by St Louis hospital. Find it here:
Read MoreFamily Lives Charity
Find out more about the charity that is dedicated to supporting those in all aspects of family life
Read MoreAll Aboard the Blatchington Branch Fundraiser for NTUK!
Find out more about the miniature railway that has raised money for NTUK
Read MoreSharon’s Story
Sharon has recently applied to run the London Marathon for NTUK, here she tells us a bit more about her experiences with NF
Read MoreParticipant Experiences of the 100,000 Genomes Project
Read more about participant's experiences of partaking in the study that sequenced 100,000 genomes from around 85,000 people
Read MoreMeet our ASICS London 10k runners
Good luck to all our runners taking part in the British ASICS 10K this Sunday!
Read More