NF Said

05 February 2021

Daisy is taking on a 38-mile running challenge for her sister Millie who was diagnosed with NF Type 2 roughly two years ago, after a number of misdiagnoses. She wants to run one mile for each person who is diagnosed with NF Type 2 each year – a self-proclaimed non-runner she will be lacing up her running shoes throughout the month of February to raise funds in support of her sister.

Daisy and Millie are best friends and despite a five-and-a-half-year age gap, they both have a love of netball. Millie’s Neurofibromatosis has knocked her confidence recently but her sister Daisy was there to pick her up.

“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”

Daisy wants to raise awareness of NF Type 2 so more people understand the difficulties and challenges people with Neurofibromatosis face in their day to day life.

Help support Daisy on her running challenge

Donate

Shine a Light 2020 Success!

Check out some amazing blue buildings that took part in our Shine a Light On Neurofibromatosis 2020 campaign

Sarah’s Story as told by her Father Clemence

Read more about Sarah's story and her Shining a Light on NF from home for World NF Awareness Day!

Statement by Helen Tomkins our Specialist Neurofibromatosis Nurse UK

A statement on coronavirus by Helen Tomkins specialist Neurofibromatosis nurse in Devon & Cornwall

Courtney’s Story

Read more about Courtney's NF Story and how she overcomes her difficulties

No Laughing Matter

Tom is a former journalist, here he describes his journey from music journalism to comedy, & what his NF2 has to do with it

Shine A Light on Neurofibromatosis 2020

Find out what we're up to for our Shine A Light campaign this year!

Statement by Michael Fry our Chair of the Board of Trustees

The impact of the corona virus on the charity sector and Nerve Tumours UK's continued support to those affected by NF

NF1, Plexiform Neurofibromas Market Research Study

Find out more about an NF1, Plexiform Neurofibromas market research survey

Statement by Rachel Jones & Rebecca Rennison our Specialist Neurofibromatosis Nurses UK

A statement on coronavirus by Rachel Jones & Rebecca Rennison specialist Neurofibromatosis nurses in the North East & Cumbria

NF Said

“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”