NF Said

05 February 2021

Daisy is taking on a 38-mile running challenge for her sister Millie who was diagnosed with NF Type 2 roughly two years ago, after a number of misdiagnoses. She wants to run one mile for each person who is diagnosed with NF Type 2 each year – a self-proclaimed non-runner she will be lacing up her running shoes throughout the month of February to raise funds in support of her sister.

Daisy and Millie are best friends and despite a five-and-a-half-year age gap, they both have a love of netball. Millie’s Neurofibromatosis has knocked her confidence recently but her sister Daisy was there to pick her up.

“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”

Daisy wants to raise awareness of NF Type 2 so more people understand the difficulties and challenges people with Neurofibromatosis face in their day to day life.

Help support Daisy on her running challenge

Donate

Hour of Power – Love Yourself Valentine’s Day workout for NF

Thanks to all those that got their hearts pumping this Valentine's Day for our NF community!

Rare Disease Day 2021 and Rare Reach Festival

Find out how you can get involved in the first ever Rare Reach Festival and make sure the Rare communities voice is heard!

NF Said

Daisy takes on a 38-mile running challenge for her sister Millie, 1 mile a day for every person diagnosed with NF2 a year

Love Yourself - Hour of Power in Support of the NF community

Get your sweat on and spread the love this Valentine's day for our NF community!

Pat’s NF Fundraiser Walk

Read all about Patrick's incredible fundraising efforts to help others affected by NF!

Laura’s Marathon effort!

Laura beats our 26.5 mile challenge and takes it to the next level - matching miles with donations, find out what she's up to

Research call: Does neurofibromatosis affect how you feel about your body?

Find out how you can improve self-help methods for people living with neurofibromatosis

Stitched up by Celia

Get inspired by Celia's creative online haberdashery shop for Nerve Tumours UK!

NF1 with Plexiform Neurofibromas Study: information for patients and carers

Find out how you can help shape the future of NF1 healthcare

NF Said

“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”

Filter News

Search by keyword

Filter by Date

Category

Hour of Power – Love Yourself Valentine’s Day workout for NF