NF Said
05 February 2021
Daisy is taking on a 38-mile running challenge for her sister Millie who was diagnosed with NF Type 2 roughly two years ago, after a number of misdiagnoses. She wants to run one mile for each person who is diagnosed with NF Type 2 each year – a self-proclaimed non-runner she will be lacing up her running shoes throughout the month of February to raise funds in support of her sister.
Daisy and Millie are best friends and despite a five-and-a-half-year age gap, they both have a love of netball. Millie’s Neurofibromatosis has knocked her confidence recently but her sister Daisy was there to pick her up.
“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”
Daisy wants to raise awareness of NF Type 2 so more people understand the difficulties and challenges people with Neurofibromatosis face in their day to day life.
Help support Daisy on her running challenge
Filter News
Gisela’s Story
Read MoreAdvice for Students with NF1, NF2-Schwannomatosis, and Schwannomotosis
Read MoreElla’s Story
Read MoreGeorgia’s Story
Read MoreNottingham NF1 INFormation Day 2024 A Big Thank You
Read MoreQuality of Life Survey
Read MoreAdvice: Travelling With NF
Learn how to navigate travel with NF confidently. Essential tips and resources for smooth, stress-free journeys by train, pla
Read MoreJoin the NF1 Cutaneous Neurofibroma Consortium Project
Join a groundbreaking NF1 study to help develop better treatments for neurofibromas. Open to adults with a clinical/genetic N
Read MoreNottingham NF1 Information Day 2024
Join us for an insightful NF1 Information Day in Nottingham on October 5, 2024. Expert talks, Q&A, and community connection.
Read More