NF Said

05 February 2021

Daisy is taking on a 38-mile running challenge for her sister Millie who was diagnosed with NF Type 2 roughly two years ago, after a number of misdiagnoses. She wants to run one mile for each person who is diagnosed with NF Type 2 each year – a self-proclaimed non-runner she will be lacing up her running shoes throughout the month of February to raise funds in support of her sister.

Daisy and Millie are best friends and despite a five-and-a-half-year age gap, they both have a love of netball. Millie’s Neurofibromatosis has knocked her confidence recently but her sister Daisy was there to pick her up.

“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”

Daisy wants to raise awareness of NF Type 2 so more people understand the difficulties and challenges people with Neurofibromatosis face in their day to day life.

Help support Daisy on her running challenge

Donate

Benjamin’s NF1 story

11 year old Benjamin has NF1 and is the inspiration for his family's fundraising

Lynne Highy joins our team of Specialist NF Advisors

Read all about the newest addition to our team.

NF Academy 2025: Georgia’s Blog

NTUK ambassador Georgia Baum shares her transformative experience of attending the NF Academy 2025 in Barcelona

Craig’s story

Craig describes his mosaic NF2 related hearing loss, and how a cochlear implant & hearing aids have changed his life

George’s Schwannoma Story

George shares his experience of being diagnosed with a schwannoma and why he's lacing up for NF awareness.

JoJo’s NF1 Story

JoJo shares how her NF1 journey has affected her; how her pain and loss have become foundations of courage and resilience.

Tristan’s Story: Hope & Resilience

Discover Tristan's NF1 story: Finding home, hope & the power of sport.

10 mile walk for Lily

Read more about the 10 mile sponsored walk for Lily, organised by Claire, with her nursery team, family & friends taking part

NF & Sport: Joy’s Journey

Find out more about the impact of sport on Joy's NF1 journey & how running changed her life forever.

NF Said

“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”