NF Said
05 February 2021
Daisy is taking on a 38-mile running challenge for her sister Millie who was diagnosed with NF Type 2 roughly two years ago, after a number of misdiagnoses. She wants to run one mile for each person who is diagnosed with NF Type 2 each year – a self-proclaimed non-runner she will be lacing up her running shoes throughout the month of February to raise funds in support of her sister.
Daisy and Millie are best friends and despite a five-and-a-half-year age gap, they both have a love of netball. Millie’s Neurofibromatosis has knocked her confidence recently but her sister Daisy was there to pick her up.
“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”
Daisy wants to raise awareness of NF Type 2 so more people understand the difficulties and challenges people with Neurofibromatosis face in their day to day life.
Help support Daisy on her running challenge
Filter News
Milton Keynes NF1 Medical Information Day 2026
Register for our Milton Keynes NF1 Medical Information Day on 9 May 2026
Read More
Rare Disease Day 2026: Equity for Rare
A look back on Rare Disease Day: Equity for Rare, 28 February 2026.
Read More
Melanie’s Ironman challenge
Melanie reflects on her journey to complete Ironman Copenhagen, in memory of her cousin Ben who had NF1
Read More
Fyling Fest Fundraiser
Fyling Fest 2025: Sunshine, music & a whole lot of heart in the Rose Garden - all in support of Bea
Read More
Bea’s Story: Courage and Resilience
Bea, 'Bringer of Joy', never stops smiling despite her condition & NF1 related complications - read her story
Read More
Margaret’s Story
Margaret reflects on life with NF and her involvement with the charity since its early days
Read More
Repurposing anti-retroviral drugs to treat NF2 related tumours Retreat Study
Join a brand new study treating tumours in NF2 patients.
Read More
Raising Awareness Georgia’s Blog
My name is Georgia Baum, I’m 25 years old and an Ambassador for Nerve Tumours UK. Read my Blog and follow my journey!
Read More