Nerve Tumours UK joins the “Embracing Complexity” Coalition
10 October 2019
Nerve Tumours UK joins the "Embracing Complexity" Coalition
Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.
Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2.
If you would like to find out more about the coalition then you can visit their website below:
The coalition was set up the charity Autistica, a charity which aims at developing a brighter future through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future.
The coalition was set up the charity Autistica
Visit their website![](/images/common/Autistica-Artboard-1.png)
Filter News
![](https://nervetumours.org.uk/images/made/images/common/adam-buxton-comedy-night-Page-Preview-800-x-500-px_800_600_s_c1.png)
Adam Buxton Comedy Night in aid of Nerve Tumours UK
Our charity comedy night was certainly nothing short of a success. Find out exactly what went down here:
Read More![](https://nervetumours.org.uk/images/made/images/common/Megan-Crews--meet-meganPage-Preview-800-x-500-px_800_600_s_c1.png)
Meet Megan
Megan Crews is a 30 year-old special needs tutor in Salisbury. She recently spoke out in The Sun.
Read More![](https://nervetumours.org.uk/images/made/images/common/Fabio-researchPage-Preview-800-x-500-px_800_600_s_c1.png)
How does your visible difference affect you?
Researchers would love to understand your experience of how a visible difference affects your daily life
Read More![](https://nervetumours.org.uk/images/made/images/common/GABYPage-Preview-800-x-500-px_800_600_s_c1.png)
Gabriella’s Story
"I believe everyone should think the same and be kind to people however they look and whatever condition they have."
Read More![](https://nervetumours.org.uk/images/made/images/common/OMN!!Page-Preview-800-x-500-px_800_600_s_c1.png)
One More Nurse Appeal Press Release
Have a read of our #OneMoreNurse appeal press release here:
Read More![](https://nervetumours.org.uk/images/made/images/common/EDEN_study_image_800_600_s_c1.png)
Recent Research from DR Shruti Garg
Find out more about some of the recent research carried out by DR Shruti Garag
Read More![](https://nervetumours.org.uk/images/made/images/common/Research-UWEPage-Preview-800-x-500-px_800_600_s_c1.png)
Advisory group of parents needed to help shape future research
Maia Thornton is a PhD student looking for an advisory group of parents who's child has an appearance altering condition
Read More![](https://nervetumours.org.uk/images/made/images/common/Olivia-Community-Spirit-Page-Preview-800-x-500-px_800_600_s_c1.png)
Olivia’s Story
Olivia is an enthusiastic and determined young girl. Have a read of her inspiring story here!
Read More![](https://nervetumours.org.uk/images/made/images/common/Lottery-fundingPage-Preview-800-x-500-px_800_600_s_c1.png)
The Big Lottery Fund pays for 2 Patient Info Days
Nerve Tumours UK receives Lottery funding
Read More