Nerve Tumours UK joins the “Embracing Complexity” Coalition
10 October 2019
Nerve Tumours UK joins the "Embracing Complexity" Coalition
Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.
Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2.
If you would like to find out more about the coalition then you can visit their website below:
The coalition was set up the charity Autistica, a charity which aims at developing a brighter future through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future.
The coalition was set up the charity Autistica
Visit their website
Filter News

Billy & Logan’s Story
Read about how engaging in sport supports them both with NF1 related issues
Read More
The One Show Year Book in Lockdown
Jacob & Ella take part in The One Show's Nationwide Yearbook for students in secondary school
Read More
Benefit and Financial Support Matters answered by our Specialist
Find out how you can get your disability benefits and financial support questions answered
Read More_800_600_s_c1.jpg)
Nerve Tumours UK Specialist Neurofibromatosis Nurses attend the 2020 NHS England NF2 Meeting
Find out what went on at the NF2 National Conference and how patient feedback has played a crucial role in improving services
Read More
Meeting Megan
Read about how Megan channels her NF1 challenges and uses it as a drive for positive change!
Read More
Nurse’s Conference 2020
Read about how our specialist nurses adapted to covid19 and supported our NF community
Read More
Children’s Tumor Foundation - NF Forum 2020 Moves Online!
Find out how you can take part in CTF's 2020 online NF Forum
Read More
Pauline & Helen Boughen’s PIP Journey
Learn how Helen & her mum Pauline overcame their difficulty with getting the benefits they deserved with Julie Ann Evans help
Read More