Nerve Tumours UK joins the “Embracing Complexity” Coalition
10 October 2019
Nerve Tumours UK joins the "Embracing Complexity" Coalition
Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.
Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2.
If you would like to find out more about the coalition then you can visit their website below:
The coalition was set up the charity Autistica, a charity which aims at developing a brighter future through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future.
The coalition was set up the charity Autistica
Visit their website
Filter News

Tate’s Shine A Light Marathon
Tate's mum shares his incredible journey with NF & why he took part in our Shine A Light Marathon to help others like him
Read More
Virtual Medical Meetings
Conferences in 2020 went online meaning the whole nursing team and key members of the head office were able to attend
Read More
Connection Coalition
NTUK joined the Connection Coalition with the aim of working together to build strong relationships & connected communities
Read More
Rare Disease Day 2021
Nerve Tumours UK joined events showcasing Rare Disease Day hosted by the Genetic Alliance on 28 February 2021
Read More
Kate, NF Mummy Community & Support
Kate tells us why she started the NF1 Mummy community group online
Read More
Alex’s story - Support in the Workplace
Alex Hetherington shares how iNForming his work colleagues about his neurofibromatosis created a supportive work environment
Read More
A Colourful 5K Challenge
Read Emma's incredible awareness raising activities for NF in her local community, Liverpool.
Read More
Our NF community share why they are taking on the World NF Day: 2.6 mile Garden Challenge!
Taking part in the World NF Day: 2.6 Garden Challenge - We want to hear from you!
Read More
Nerve Tumours UK takes part in the Genomics Showcase
Find out how you can take part in the Genomics showcase – sign up for free!
Read More