Nerve Tumours UK joins the “Embracing Complexity” Coalition
10 October 2019
Nerve Tumours UK joins the "Embracing Complexity" Coalition
Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.
Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2.
If you would like to find out more about the coalition then you can visit their website below:
The coalition was set up the charity Autistica, a charity which aims at developing a brighter future through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future.
The coalition was set up the charity Autistica
Visit their website
Filter News
_370x280_800_600_s_c1.jpg)
The Scottish Parliament Rare Disease Day Online Reception 15/03/2023
NTUK attended the Scottish Parliament Rare Disease Day online reception
Read More
Support Derry’s and Dan’s Marathon Run for NTUK
Dan and Derry will be taking on the London Marathon in support of Nerve Tumours UK
Read More
Ragbir’s London Marathon
Ragbir is the Paediatric Lead for NF1 in Leeds and is running the London Marathon
Read More
Rare Disease Day 2023
NTUK joined in with Rare Disease Day 2023, helping raise awareness of how better coordination of care can improve lives.
Read More
Ashley’s NF1 story
Ashley loves red pandas, he's a 32 year old IT Specialist and has NF1. He is running a half marathon to raise NF awareness
Read More
Guy’s & St.Thomas’s Monthly Care Awards
NF paediatric nursing team, Mandy and Katrina win the Guy’s and St Thomas’ Hospital November CARE Award 2022
Read More
Cost of Living Crisis - Initiative
NTUK have co-signed an open letter to the Chancellor of the Exchequer on the cost of living
Read More
Living with NF1: psychological impact & experiences
Research: Understanding the reality of the NF1 journey from diagnosis to daily life, and the emotional impact it has
Read More