The results are in for our Nerve Tumours UK film nominated at the Rare diseases film festival!
05 March 2020
Voting for the Peoples Choice Award at the Rare Film Festival 2020 has now closed and the results are in!
Unfortunately Nerve Tumours UK did not win but we are proud to have been selected and given the opportunity to spread the message for neurofibromatosis & schwannomatosis in the UK. We would like to say a huge thank you to the 260 people who voted for our film "Shine A Light on Neurofibromatosis"!
Congratulations to all of the participants and for anyone who hasn't seen our film yet you can check it out on our YouTube channel below.
Nerve Tumours UK film shortlisted at first ever rare diseases film festival!
Rare Disease UK as part of the Genetic Alliance is hosting the UK’s first ever film festival that is dedicated to raising awareness of rare diseases.
Our entry "Shine A Light on Neurofibromatosis" has been shortlisted as potential winner of 'Best Charity Film' category. The festival had over 50 entries. The Awards Ceremony will take place on the 10th of February at Regent Street Cinema, at 6:30 pm.
During the night the winner of all the categories will be announced.
Nerve Tumours UK took part in the festival in order to raise awareness for those that are affected by Neurofibromatosis Type 1 and Type 2 and reach a wider audience. Please have a look at the video below. We are more than grateful to the Burbdrige family and Emily Owen for sharing their stories on camera. Feel free to share.
– Phil K Matthew Film Director"Making this film and raising awareness of NF Type 1 and NF Type 2 - specifically capturing the stories of those that are affected - was incredibly fascinating. Films should always have a strong narrative and being able to share their inspiring stories and their courageous journey through adversity, was both heart-warming and inspirational. "
Filter News
Sunflower lanyards to support patients and visitors with hidden disabilities
Read about the new lanyards being given out at Heathrow, Sainsbury's and Gatwick to help support those with disabilities
Read More
NTUK attends Small Charity Week
Nerve Tumours UK attended Small Charity Week, find out more about the week and why we attended here:
Read More
Nerve Tumours UK Specialist Neurofibromatosis Nurses attend the National NF2 CQuinn Meeting in Manchester.
Have a read about what was talked about at this year's National NF2 CQuinn Meeting in Manchester
Read More
Nerve Tumours UK adds BrowseAloud to their website
Have a read about the new software we have uploaded to our website in order to make it more accessible to everyone.
Read More
11 year old inspired to run 31 miles within 8 hours for his brother who has NF
Have a read about young Will's remarkable achievement that has been inspired by Adam Jacob's story on our website
Read More
Simon’s Story
Have a read of Simon's Story and his desire to help NF2 Bio Solutions find a cure for NF2:
Read More
Steve Brine MP helps spread awareness for Nerve Tumours UK
The Burbridge Family recently met up with MP Steve Brine to help spread awareness for NF. Find out more here:
Read More
Meet Tom
Tom Hazell is 37, works in IT, lives in Essex with his long-term partner, he has NF2/Schwannomatosis Find out more here:
Read More
A Gamble Across Britain
James will be cycling the length of the country this September- that's 980 miles! Find out more here:
Read More