Megan’s Story
28 May 2020
My name is Megan. I'm 19 and I was diagnosed with NF1 and mild Scoliosis when I was 11. My NF1 was discovered when I was seeing my paediatrician for something completely different. I'm forever greatful to him for knowing about the condition and recognising it as otherwise, I still may not have known about it to this day.
Since my diagnosis, they've discovered through MRI scans some fibromas in my brain, which are being closely monitored by the amazing neurosurgery team at The Queen Elizabeth hospital. I'm always grateful for everything my doctors have done for me- they've kept me informed, reassured me and made sure that everything was explained to me in regards to treatment options.
Despite my NF1, I am living life to the full and doing the things that I love. I have a scary acting job, I'm studying to be a children's nurse and I'm making the best out of every day. NF1 is a part of who I am, but it doesn't define or control me and I hope that one day we will #EndNF
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Shine-a-Light_1600x900px_800_600_s_c1.jpg)
Shine a Light on Neurofibromatosis
World Neurofibromatosis Awareness Day - May 17th. Help us raise £ 26,500 for 26,500 people in the UK who have nerve tumours.
Read More![](https://nervetumours.org.uk/images/made/images/common/jem-nd-richPage-Preview-800-x-500-px_800_600_s_c1.png)
Jem Musselwhite and Rich White are fundraising by walking the Pilgrims’ Way
Jem and Rich are walking more than 100 miles to raise money for Nerve Tumours UK. Find out more here:
Read More![](https://nervetumours.org.uk/images/made/images/common/Rachel-Page-Preview-800-x-500-px_800_600_s_c1.png)
Meet Rachael
Rachael Reynolds is a 43-year-old mother of four, living in Huddersfield. She recently appeared in the Channel 5 programme,
Read More![](https://nervetumours.org.uk/images/made/images/common/Beijing-MarathonPage-Preview-800-x-500-px_800_600_s_c1.png)
Meet Our Two Marathon Runners from China
Meet our two runners from China who like to partake in marathons across the globe.
Read More![](https://nervetumours.org.uk/images/made/images/common/Andrew-Leak-MarathonPage-Preview-800-x-500-px_800_600_s_c1.png)
Andrew Leak is set to Complete 10 London Marathons!
Andrew Leak is about to complete his mission of running 10 London Marathon's! Find his press release here
Read More![](https://nervetumours.org.uk/images/made/images/common/Gemma-Barnes-Page-Preview-800-x-500-px_800_600_s_c1.png)
Meet Gemma
Gemma Barnish has NF2 and has recently gotten married, find out more about her intriguing life here:
Read More![](https://nervetumours.org.uk/images/made/images/common/KIDZ-ADULTZPage-Preview-800-x-500-px_800_600_s_c1.png)
Kidz to Adultz Exhibitions
Kidz to Adultz offer a number of free exhibitions across the year to offer adivce and information on living with a disability
Read More![](https://nervetumours.org.uk/images/made/images/common/CARPage-Preview-800-x-500-px_800_600_s_c1.png)
Centre for Appearance Research at UWE want you to help test online support for people with Nerve Tumours
Centre for Appearance Research are looking for people with Nerve Tumours to test their new online support
Read More![](https://nervetumours.org.uk/images/made/images/common/support-specialPage-Preview-800-x-500-px_800_600_s_c1.png)
Support Specialists Challenges and Ambitions
Read more on both Rachel and Carolyn's views on their ambitions and challenges faced as Support Specialists
Read More