Megan’s Story
28 May 2020
My name is Megan. I'm 19 and I was diagnosed with NF1 and mild Scoliosis when I was 11. My NF1 was discovered when I was seeing my paediatrician for something completely different. I'm forever greatful to him for knowing about the condition and recognising it as otherwise, I still may not have known about it to this day.
Since my diagnosis, they've discovered through MRI scans some fibromas in my brain, which are being closely monitored by the amazing neurosurgery team at The Queen Elizabeth hospital. I'm always grateful for everything my doctors have done for me- they've kept me informed, reassured me and made sure that everything was explained to me in regards to treatment options.
Despite my NF1, I am living life to the full and doing the things that I love. I have a scary acting job, I'm studying to be a children's nurse and I'm making the best out of every day. NF1 is a part of who I am, but it doesn't define or control me and I hope that one day we will #EndNF
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K-Star Wrestling in aid of NTUK
Find out more about the successful wrestling event that took place in aid of NTUK
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2019 NF Conference
Find out more about the 2019 NF Conference being hosted by our friends across the pond the CTF
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Kate Swallow’s Fantastic Fundraiser at the Tipsy Pig
Find out more about the succesful and throughly enjoyed charity music event hosted by Kate Swallow at the Tipsy Pig
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Support Specialist: One of Many Cases
Have a read about a specific case study detailing the kind of work our support specialists offer to those with NF
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Thank You James Gamble!
James Gamble just completed an incredible fundraiser in which he has cycled a total of 980 miles for NTUK! Find out more here
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Teagan Martin’s first day at Canterbury Secondary School
Have a read about the incredible young girl who continues to defy the odds here
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Kloe van der Merwe - Our NF hero as told by Mum Candice
Hear about the incredibly brave young girl as told by her Mum Candice
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Wass’ Everyday Battlers 10K Stratford Run
Wassim is running the 10K Stratford Run for Nerve Tumours UK. Here he explains his reasons as to why:
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Megan’s Skyfall
Megan is undertaking a sponsored skydive for NTUK as part of her travels! Find out more here
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