Helpline 07939 046 030

Megan’s Story

28 May 2020

My name is Megan. I'm 19 and I was diagnosed with NF1 and mild Scoliosis when I was 11. My NF1 was discovered when I was seeing my paediatrician for something completely different. I'm forever greatful to him for knowing about the condition and recognising it as otherwise, I still may not have known about it to this day. 

Since my diagnosis, they've discovered through MRI scans some fibromas in my brain, which are being closely monitored by the amazing neurosurgery team at The Queen Elizabeth hospital. I'm always grateful for everything my doctors have done for me- they've kept me informed, reassured me and made sure that everything was explained to me in regards to treatment options.

Despite my NF1, I am living life to the full and doing the things that I love. I have a scary acting job, I'm studying to be a children's nurse and I'm making the best out of every day. NF1 is a part of who I am, but it doesn't define or control me and I hope that one day we will #EndNF

Filter News

Filter by Date
Category
Reset

Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

Read More

Beth’s Novasper Online Dog Show 2021

Find out how you can get involved in this year's fluffiest and loveable online dog show!

Read More

Esme’s Summer of Slides

Join Esme this summer and slide down as many slides as you can for NTUK!

Read More

Christian’s Story

Christian's Mum, Ellie, share's their journey with NF & why they decided to get involved with this year's Garden Challenge!

Read More

Tate’s Shine A Light Marathon

Tate's mum shares his incredible journey with NF & why he's taking part in our Shine A Light Marathon to help others like him

Read More

A Colourful 5K Challenge

Read Emma's incredible awareness raising activities for NF in her local community, Liverpool.

Read More

Our NF community share why they are taking on the World NF Day: 2.6 mile Garden Challenge!

Taking part in the World NF Day: 2.6 Garden Challenge - We want to hear from you!

Read More

Nerve Tumours UK takes part in the Genomics Showcase

Find out how you can take part in the Genomics showcase – sign up for free!

Read More

Kate “NF1 Mummy” Your Questions on parenting answered:  World Neurofibromatosis Day 17 May 2021

Have you got questions about your child’s NF diagnosis? Send them into us for World NF Awareness Day

Read More