Megan’s Skyfall
03 September 2019
Megan's Skyfall
EDIT:
Megan has now completed her Skydive (see photo below). Continue reading however to see Megan's full story detailing her travels with NF.
Having NF is a constant struggle; whether it be dealing with pain, worrying what people think of the skin tags that are all over my torso or overthinking what the future holds for me.
Since the 15th March 2019 I have been back packing the West Coast, Northern and Central Australia sleeping in a tent for the majority of time and have had the most wonderful time, even with the back, knee and hand pain I struggle with some days.
I have been telling everyone I meet about this condition and how it affects me and others, how I have changed my diet to be a more natural, plant based diet in order to try to stem the growths and how Nerve Tumours UK help us all through information days, research, support centres and raising money to allow for more NF nurses across the country.
I have received nothing but love, support and curiosity from these wonderful people I have met and each person wondering why they have never heard of it before.


I'm now on the East coast where I have the opportunity to finally tick sky diving off my bucket list and in the most beautiful setting of Airlie beach
Having already written articles for The Sun and The Mirror newspaper and with my cousin running the Birmingham 10k it's now time to do something to myself to raise more money and awareness for our wonderful charity.
15,000 ft isn't that high right?
Megan having after completed her Skydive!


Filter News

Today is Giving Tuesday
Call out by Karen Cockburn, Charity Director, to donate and support the NF Community
Read More
Runderpants fun run
Get your Runderpants here! Set up a fun run wearing some special fundraising pants
Read More
Avastin Side Effects
Jo highlights Avastin side effects, from experience of her son Oscar's treatments, plus shared testimonies from others
Read More
2023 Awareness Campaign
Nerve Tumours UK have joined forces with RBH to raise awareness for a second successive year.
Read More
Disclosing and explaining visible differences - CAR Workshop
Read more about the workshop, featuring additional guidance from Specialist NF Nurse Rebeca Rennison
Read More
Jo Ward’s Avastin Blog
Jo Ward, CEO of NF2 BioSolutions UK, shares a blog about her son Oscar's Avastin journey
Read More
World Mental Health Day 2023
NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services
Read More
CAR Research visible difference experiences during recruitment
Research participants required, find out more and take part
Read More
NF Academy 2023 - Ella’s Blog
Ella, who has NF1, attended the week-long 2023 NF Academy in Portugal, meeting young adults with NF from all over Europe
Read More