Helpline 07939 046 030

Megan’s Journey

09 October 2019

Megan's Journey

Megan-Cherise Kerr is a current undergraduate student studying Biomedical Science at the University of Greenwich. She was diagnosed with NF1 when she was 8 years old (and also diagnoses of ADHD, Dyslexia, Irlins and Dyspraxia). Here she talks about how she hasn’t let this hold her back, and about recently attending a global Neurofibromatosis Conference in San Francisco.   

I have faced many challenges in my life and have had to fight my way through many battles to reach the point I am at now. For many years people have told me what they think I can’t do, without knowing what I am capable of. Now, at 23 years of age, I am continuing to fight back and prove to anyone who doubts my abilities that I can have a successful life.

Being a student at university with NF1 hasn’t been easy. I have faced many challenges the least couple of years.

On the first day of term in my second year, all of my friends were beginning the new academic year whilst I was in hospital having my fourth operation to debulk a plexiform neurofibroma on my face. This was quite a big operation which involved me missing almost seven weeks of university lectures. After Christmas I had finally caught up with everything I had missed, only to be told I needed another operation, this time to remove three other plexiform neurofibromas, throughout my body.

Despite all of these challenges I managed to finish the year with 79%. The equivalent of a First.

"Despite all of these challenges I managed to finish the year with 79%. The equivalent of a First. "

– Megan

Megan with Mary Thomas, Clinical Nurse Specialist, GSTT London.

At university I am a STAART (Support Through Access Ability Retention and Transition) Ambassador. As part of this team, I provide information, guidance and support to disabled and diverse students who have concerns about going to university or are current university students. We understand that starting university can be difficult for anyone, and if you have a disability this can be even harder, but with the right support this transition can be made easier.

In September 2019 I travelled solo to San Francisco to attend the global Neurofibromatosis Conference hosted by the Children’s Tumor Foundation. Over the 4 days of the conference we heard from leading researchers across a wide range of scientific disciplines, in research and clinical backgrounds within the neurofibromatosis community. This included discussions regarding pain and itch, the future of precision health, and presentations showing the promising results surrounding the MEK inhibitor trials. Much of the research presented is so new it is currently unpublished.

As a young scientist I was inspired and my passion for research was truly fuelled. Everyone I spoke to was surprised to learn I was only an undergraduate student and they were so supportive and provided me with valuable information and guidance to further my career as a research scientist.

Attending the NF conference in San Francisco has given me even more drive and determination, and I am looking forward attending the conference next year in Philadelphia.

"Attending the NF conference in San Francisco has given me even more drive and determination, and I am looking forward attending the conference next year in Philadelphia."

– Megan

Filter News

Filter by Date
Category
Reset

Ella’s Blog: The Flu Jab

Ella's updates on the impact of coronavirus on her daily life

Read More

Thank you for taking part in our World NF Day: 2.6 mile Garden Challenge!

Find out what our amazing NF supporters got up to on World NF Day!

Read More

Stewart Lee Member of the Board of Trustees who has NF2 on Lockdown Life

Let's celebrate World NF2 Day, because we live our lives with such a hard condition; let's focus on how amazing we all are!

Read More

Tom GK in Lockdown

NF2 can be a lonely business; but now there are 60-odd million people in Britain who have all learned how precious & fragile

Read More

Emily Owen Member of the Board of Trustees takes over our Social

‘All the World’s a Stage…’ (Shakespeare) Welcome to our World NF2 Day 2020 Theatrical Entertainment

Read More

Face Equality Week 2020

Changing Faces continues to campaign amidst the current crisis - Face Equality Week

Read More

World NF 2 Day May 22nd 2020

See what we're up to for this World Neurofibromatosis Type 2 day

Read More

Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK

A statement on coronavirus by Mary Thomas clinical nurse at Guy's and St Thomas' NHS Foundation Trust

Read More

Second Face Equality International Week

Find out more & how you can take part

Read More