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Meet our ASICS London 10k runners

18 July 2019

Meet our ASICS London 10k runners

This Sunday we have 6 runners taking on the ASICS 10k for Nerve Tumours UK!

Before the run we thought we would take some time to share with you just why some of the runners have decided to go the extra mile for NTUK

"My beautiful daughter Bonnie was diagnosed with NF1. I'm supporting Nerve Tumours UK because their mission means a great deal to me. They provide crucial support to people living with the Neurofibromatoses- the conditions that cause nerve tumours."

– Tracy Dwyer

Denise Lawrence Beard is also supporting NTUK

As is Joy Woolass

We at Nerve Tumours UK would like to thank everyone running for taking the time and effort to support our shared crucial cause, and we would also like to wish them good luck for the race on Sunday 😊

Update: 

We at Nerve Tumours UK  would like to thank all the runners for taking part in last weekends ASICS London 10K, and thanks to Denise Lawrence-Beard for her wonderful before and after pitctures of the race 😊 (pictured below)

All your hard work goes such a long way to helping provide the care and support to those affected by the Neurofibromatoses and Schwannomatosis up and down the country! 

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Meet Helen

Helen is the Specialist NF Advisor for Devon and Cornwall and is based at Derriford Hospital in Plymouth.

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Meet Rebecca

Specialist NF Nurse Rebecca is Lead Nurse, NTUK and is based at the Genetics Institute at the Centre for Life in Newcastle

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World Mental Health Day 2023

NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services

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CAR Research visible difference experiences during recruitment

Research participants required, find out more and take part

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Oliver Bromley’s NF Story

Oliver Bromley, with NF1, was asked to leave a restaurant due to his appearance, sparking a call for greater awareness and ed

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NF Academy 2023 - Ella’s Blog

Ella, who has NF1, attended the week-long 2023 NF Academy in Portugal, meeting young adults with NF from all over Europe

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University of Manchester Research

Read about the latest PHD research, involving Nerve Tumours UK, at the University of Manchester

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New Research Study for Children and Young People with NF1

Find out more about the study and how you can participate here

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Neurofibromatosis Type 2 name change

The new name for Neurofibromatosis Type 2 is NF2-related-Schwannomatosis (NF2)

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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