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Meet our ASICS London 10k runners

18 July 2019

Meet our ASICS London 10k runners

This Sunday we have 6 runners taking on the ASICS 10k for Nerve Tumours UK!

Before the run we thought we would take some time to share with you just why some of the runners have decided to go the extra mile for NTUK

"My beautiful daughter Bonnie was diagnosed with NF1. I'm supporting Nerve Tumours UK because their mission means a great deal to me. They provide crucial support to people living with the Neurofibromatoses- the conditions that cause nerve tumours."

– Tracy Dwyer

Denise Lawrence Beard is also supporting NTUK

As is Joy Woolass

We at Nerve Tumours UK would like to thank everyone running for taking the time and effort to support our shared crucial cause, and we would also like to wish them good luck for the race on Sunday 😊

Update: 

We at Nerve Tumours UK  would like to thank all the runners for taking part in last weekends ASICS London 10K, and thanks to Denise Lawrence-Beard for her wonderful before and after pitctures of the race 😊 (pictured below)

All your hard work goes such a long way to helping provide the care and support to those affected by the Neurofibromatoses and Schwannomatosis up and down the country! 

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Olivia’s NF1 story

Olivia and mam Kelly share their NF1 story, highlighting school achievements and support from NTUK Specialist Nurses

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Eashan’s NF1 story

'Why Run'... Eashan was diagnosed with NF1 after losing his eyesight when he was 5. His mother Jen tells his story.

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2023 Awareness Campaign

Nerve Tumours UK have joined forces with RBH to raise awareness for a second successive year.

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Disclosing and explaining visible differences - CAR Workshop

Read more about the workshop, featuring additional guidance from Specialist NF Nurse Rebecca Rennison

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Jo Ward’s Avastin Blog

Jo Ward, CEO of NF2 BioSolutions UK, shares a blog about her son Oscar's Avastin journey

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Nigel’s story - Normal is as normal does

Nigel lived a normal life until age 47. The next 20 years took him from NF1 to NF2 to Schwannomatosis to mosaic NF2

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Meet Helen

Helen is the Specialist NF Advisor for Devon and Cornwall and is based at Derriford Hospital in Plymouth.

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Meet Rebecca

Specialist NF Nurse Rebecca is Lead Nurse, NTUK and is based at the Genetics Institute at the Centre for Life in Newcastle

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World Mental Health Day 2023

NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

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Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

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Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France. 

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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