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Meet our ASICS London 10k runners

18 July 2019

Meet our ASICS London 10k runners

This Sunday we have 6 runners taking on the ASICS 10k for Nerve Tumours UK!

Before the run we thought we would take some time to share with you just why some of the runners have decided to go the extra mile for NTUK

"My beautiful daughter Bonnie was diagnosed with NF1. I'm supporting Nerve Tumours UK because their mission means a great deal to me. They provide crucial support to people living with the Neurofibromatoses- the conditions that cause nerve tumours."

– Tracy Dwyer

Denise Lawrence Beard is also supporting NTUK

As is Joy Woolass

We at Nerve Tumours UK would like to thank everyone running for taking the time and effort to support our shared crucial cause, and we would also like to wish them good luck for the race on Sunday 😊

Update: 

We at Nerve Tumours UK  would like to thank all the runners for taking part in last weekends ASICS London 10K, and thanks to Denise Lawrence-Beard for her wonderful before and after pitctures of the race 😊 (pictured below)

All your hard work goes such a long way to helping provide the care and support to those affected by the Neurofibromatoses and Schwannomatosis up and down the country! 

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New research into non-discrimination law

Durham University is looking for participants who look different due to their health complications. such as NF.

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Letter from our new Chair

A letter detailing the vision of our new chair, and the future of the charity.

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Launch of Nerve Tumours UK

Following a major strategic review, the Neuro Foundation charity is now known as Nerve Tumours UK.

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Dr Shruti Garg is the first non-US resident to receive NF1 $555,000 research award.

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EDEN Study Progress Report

The EDEN study has enrolled 30 babies and toddlers to understand how infants with NF1 develop.

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Ella’s story

Have a read of Ella's story here. An uphill battle which we know she will turn around!

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Grace’s Story

Have a read of Grace's story and she overcame her insecurites surrounding her NF

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Helpful Charities

Find some of the other helpful charities that may be able to support you here

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

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Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

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Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 1: from a tentative diagnosis and beyond

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Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

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Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK