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Meet our ASICS London 10k runners

18 July 2019

Meet our ASICS London 10k runners

This Sunday we have 6 runners taking on the ASICS 10k for Nerve Tumours UK!

Before the run we thought we would take some time to share with you just why some of the runners have decided to go the extra mile for NTUK

"My beautiful daughter Bonnie was diagnosed with NF1. I'm supporting Nerve Tumours UK because their mission means a great deal to me. They provide crucial support to people living with the Neurofibromatoses- the conditions that cause nerve tumours."

– Tracy Dwyer

Denise Lawrence Beard is also supporting NTUK

As is Joy Woolass

We at Nerve Tumours UK would like to thank everyone running for taking the time and effort to support our shared crucial cause, and we would also like to wish them good luck for the race on Sunday 😊

Update: 

We at Nerve Tumours UK  would like to thank all the runners for taking part in last weekends ASICS London 10K, and thanks to Denise Lawrence-Beard for her wonderful before and after pitctures of the race 😊 (pictured below)

All your hard work goes such a long way to helping provide the care and support to those affected by the Neurofibromatoses and Schwannomatosis up and down the country! 

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Nerve Tumours UK joins the “Embracing Complexity” Coalition

Find out more about the coalition we have decided to join

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Researching NF1

Rory Deasy has conducted research into the treatment of children with NF1. Here he talks about his research journey.

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Aldo goes to Primary School

Find out more about the book aimed at helping people understand the life of an autistic boy going through primary school here

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Eva’s Races

Eva has run 3 races over the past year for NTUK, find out what has been motivating her here:

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Carl’s Story in memory of his sister who had NF2

Carl recently hosted his own wrestling event in memory of his late sister, find out more on his story here:

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NTUK Dolphins at the Swim Serpentine 2019

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Rotary’s Summer Evening Jazz Concert in aid of NTUK

Find out more about the amazing Jazz Concert that was hosted in aid of NTUK here:

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K-Star Wrestling in aid of NTUK

Find out more about the successful wrestling event that took place in aid of NTUK

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Prof. Dr. Katharina Wimmer, Medical University of Innsbruck

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Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

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Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

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NF1 Working Together Part 2: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 1: from a tentative diagnosis and beyond

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Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

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Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France

Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK

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Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

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Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

Masterclasses in NF: NF1 Pediatric Management - Rianne Oostenbrink

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Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium

Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France. 

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Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK

Viktor-Felix Mautner, MD, PhD. University Medical Centre in Hamburg-Eppendorf, Germany. Head of NF Outpatient Department

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Sirkku Peltonen MD, PhD. University of Gothenberg, Sweden. Professor of Dermatology

INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK