Helpline 07939 046 030

Making the Future of Work inclusive of persons with disability

27 November 2019

Making the Future of Work inclusive of persons with disability

As a member of Face Equality International we are sharing James Partridge's presentation at a recent conference in Geneva raising disability issues in the workplace for those that are affected with facial differences. 

Facial disfigurement: a neglected global human rights issue

Exploring the origins of the campaign for ‘face equality’ (like race equality) and its implications for businesses, schools, governments, the media and public opinion.

There are many reasons why people have facial differences or disfigurements — from congenital causes (e.g.: cleft lip and palates, neurofibromatosis, birthmarks), trauma (e.g.: burns, acid violence, scarring from accidents), facial and skin cancer, skin conditions (e.g.: psoriasis, vitiligo, acne), eye problems and facial paralysis (e.g.: Bell’s palsy and stroke). Disfigurement can affect people at any age, from any ethnic or socio-economic group. It is estimated that 1 in 111 people have a psychological and social significant facial disfigurement. People with disfigurements wherever they live in the world face many challenges and injustices to living confident, successful lives in the 21st century. Many report (and academic studies bear this out) feeling isolated and friendless, facing teasing, ridicule and staring in public, low expectations in school, problems getting work, discrimination in the workplace, abuse on social media and stereotyping in the media just because of the way they look. In many countries, disfigurement goes hand in hand with poverty, prejudice and exclusion.

The stigma of disfigurement is rooted in three totally false but deeply conditioned and unconscious beliefs which impinge on a person’s self-worth which suggest that: facial ‘good looks’ are vital for success in life; without them, failure is sadly inevitable modern medicine/surgery can remove disfigurements completely disfigurement is associated with meanness, lack of intelligence, immorality and evil. All too often, the stigma is self-imposed too with low expectations of success and a lack of aspiration leading to a resignation that this is how things will always be, and consequently unfairness and discrimination go unchallenged. And worse, people report that authorities who should stand up to prejudice (e.g.: schools) fail to do so even when alerted to it. The campaign for ‘face equality’ was launched in May 2008 by the UK charity/NGO, Changing Faces and is being internationalised through Face Equality International. Its aim is to create a world in which people who have disfigurements to their face from any cause are accepted and valued as equal citizens, free of prejudice, low expectations and stigma.

The campaign calls on  individuals to spread the word, to stand out and to support face equality education systems to train all teaching staff to develop inclusive school cultures
employers to recruit and serve people with disfigurements without prejudice the media, advertisers and the film industry to positively promote facial diversity and actively avoid language and imagery that create prejudice politicians and policymakers to ensure that facial prejudice and discrimination are effectively outlawed by improving legal protection and promoting best practice.

For further information on the conference itself please have a look at the following campaign and their website 

Filter News

Filter by Date
Category
Reset

Disfigurement equality at work - research

This research study by Queen Mary University, London, aims to improve workplace equality for people with disfigurements

Read More

RAISING THE ROOF: CHARITY COMEDY NIGHT IN AID OF NERVE TUMOURS UK

Join us in London on our first comedy night to celebrate 40 years of Nerve Tumours UK

Read More

NF1 stem cell research study

Julieta is carrying out stem cell research to understand brain development in those with NF1

Read More

Ava-Lily’s NF1 story

Ava-Lily is thriving at school despite various NF1 related difficulties - read her story

Read More

Westminster Virtual Rare Disease Day 2022 Reception

NTUK joined the annual international event aimed at raising awareness & highlighting the needs of people with rare diseases

Read More

Tate found his 2022 challenge!

Support Tate with his 2 day Shine A Light marathon!

Read More

Noreen’s story

Read Noreen's incredibly honest & moving blog about living with NF1

Read More

Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

Read More

Rare Disease Day 2022

Nerve Tumours UK joins events showcasing Rare Disease Day, hosted by the Genetic Alliance, on 28 February 2022

Read More