Luke’s Story
20 February 2024
My connection with NF is that I have been living with it since I was a little kid, and it really shaped my childhood. I missed out on playing football, which was a huge passion of mine, as I spent a lot of time in hospital beds or recovering at home from surgeries. But last year, I had adult rods surgery on my spine, and now I'm finally free to play and do whatever I want.
I want to support Nerve Tumours UK as I am affected by NF1 and I want to help the best I can so that people have a better childhood than I did. In 2017, my mum was fundraising for the Neuro Foundation, and I would like to fundraise for them as well.
My hobbies include being a big football fan and loving water sports. The pictures I’ve attached are a picture of me in the Neuro foundation hospital as a child and a picture of me now.
Share YOUR story for Rare Disease Day
Nerve Tumours UK joined in this year's Rare Disease Day theme -"Facts behind the Stories", and highlights the diverse outcomes and impacts that NF can have on each individual and their loved ones. Follow in Luke's footsteps and share YOUR story by emailing info@nervetumours.org.uk.
This is one of the stories that we have received for Rare Disease 29.02.2024 Day 2024. Help us make #MakeNFVisible.