23 March 2020
Emily is one of the Trustees at Nerve Tumours UK and she recently hosted a dinner and NF presentation at the Rotary Club of Leighton, where 36 people attended the event to learn more about Neurofibromatosis. She suffers from Neurofibromatosis Type 2 herself.
People were very interested to learn more about Neurofibromatosis type 2 and the affect it has on people, with many people wanting to know more and asking lots of engaging questions from the floor after the presentation
Nerve Tumours UK was the chosen charity for the annual Brains of Leighton Buzzard Quiz, held at the Cedars school in Leighton Buzzard on Monday 9th March 2020
Forty five teams and nearly two hundred competitors took part in the event, and through ticket sales, raffle, tombola and refreshments, the Club managed to raise a substantial sum for the charity.
The president of the Club Andrew White said “ I’m over the moon that we managed to raise this amount for my chosen charity, this was chosen by me as my son Jack is affected by NF2” , and for the tremendous support he has received and treatment over the past 12 years. I was keen to raise a large sum for the charity, and to make the participants of the quiz aware of this condition.
Despite the anxiety caused by the current Health Crisis the people of Leighton Buzzard turned out to support this worthy cause and to make the event a success, the amount they spent was incredible and I would like to thank each and every one of them.
Nerve Tumours UK Specialist Neurofibromatosis Nurses attend the 2021 NHS England NF2 meeting
Read more about the England NF2 meeting - working together to improve the experience of NF2 patientsRead More