Laura’s Marathon effort!
29 January 2021
Laura decided to get fit for January, taking on our 26.5-mile New Year running challenge. A newbie to the running game, starting only last summer with a Couch to 5K, Laura decided to use her new running passion to help her three-year-old son Elliot, who was diagnosed with Neurofibromatosis Type 1 (NF1) in the summer of 2018.
“I couldn’t think of a better way to start raising awareness for Neurofibromatosis and supporting Nerve Tumours UK by running a total distance of 26.5 miles in January!”
![](/images/common/Laura_Running_marathon.png)
When Laura first found out about Elliot’s condition, she says “it was a huge shock” & “rather intimidating”. Fortunately, she found out about Nerve Tumours UK and got in contact with one of our Specialist NF Nurses, who provided insight into her son’s condition and helped to alleviate some of her concerns.
“She was so knowledgeable, and I can’t describe the difference it made being able to pick up the phone and just talk and get advice. And the charity does so so much more than just that”
Laura has surpassed her target of 26.5 miles by more than 13.5 miles, completing a total of 41 miles in 10 runs over January!
The next step –
Laura is taking things even further and has organised an ‘Hour of Power’ online fitness fundraiser with Turner Fitness on the 14th of February, with the theme of ‘Love Yourself’ to coincide with Valentine’s Day. Anyone who joins the class can donate and 100% of the money raised will support Laura’s virtual marathon challenge.
If that wasn’t already enough, Laura has decided to match in miles the total amount of money raised in her marathon fundraiser. That means if she raises £500, she will be running 500 miles! Any donations made to her fundraiser from the 15th to 1st of March will mean she will match them by running even more miles. Go, Laura!
You can support Laura on her running challenge below.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/FB_IMG_1667295994710_370x280_800_600_s_c1.jpg)
Olivia’s NF1 story
Olivia and mam Kelly share their NF1 story, highlighting school achievements and support from NTUK Specialist Nurses
Read More![](https://nervetumours.org.uk/images/made/images/common/20230517_190605_370x280_800_600_s_c1.jpg)
Eashan’s NF1 story
'Why Run'... Eashan was diagnosed with NF1 after losing his eyesight when he was 5. His mother Jen tells his story.
Read More![](https://nervetumours.org.uk/images/made/images/common/20580-Ratios-Bus-Press-Advert-225x168_New_code_Low_res_370x280_800_600_s_c1.jpg)
2023 Awareness Campaign
Nerve Tumours UK have joined forces with RBH to raise awareness for a second successive year.
Read More![](https://nervetumours.org.uk/images/made/images/common/CAR_VTCT_logo_370x280_800_600_s_c1.jpg)
Disclosing and explaining visible differences - CAR Workshop
Read more about the workshop, featuring additional guidance from Specialist NF Nurse Rebecca Rennison
Read More![](https://nervetumours.org.uk/images/made/images/common/Jo__Oscar_370x280_800_600_s_c1.jpg)
Jo Ward’s Avastin Blog
Jo Ward, CEO of NF2 BioSolutions UK, shares a blog about her son Oscar's Avastin journey
Read More![](https://nervetumours.org.uk/images/made/images/common/NL_and_HRH_Pune_with_photo_370x280_800_600_s_c1.jpg)
Nigel’s story - Normal is as normal does
Nigel lived a normal life until age 47. The next 20 years took him from NF1 to NF2 to Schwannomatosis to mosaic NF2
Read More![](https://nervetumours.org.uk/images/made/images/common/Helen_Tomkins_370x280_800_600_s_c1.jpg)
Meet Helen
Helen is the Specialist NF Advisor for Devon and Cornwall and is based at Derriford Hospital in Plymouth.
Read More![](https://nervetumours.org.uk/images/made/images/common/Rebecca_Rennison_370x280_800_600_s_c1.jpg)
Meet Rebecca
Specialist NF Nurse Rebecca is Lead Nurse, NTUK and is based at the Genetics Institute at the Centre for Life in Newcastle
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK_Neuro_Alliance_Huntingtons_logos_370x280_800_600_s_c1.jpg)
World Mental Health Day 2023
NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services
Read More