Laura’s Marathon effort!
29 January 2021
Laura decided to get fit for January, taking on our 26.5-mile New Year running challenge. A newbie to the running game, starting only last summer with a Couch to 5K, Laura decided to use her new running passion to help her three-year-old son Elliot, who was diagnosed with Neurofibromatosis Type 1 (NF1) in the summer of 2018.
“I couldn’t think of a better way to start raising awareness for Neurofibromatosis and supporting Nerve Tumours UK by running a total distance of 26.5 miles in January!”
When Laura first found out about Elliot’s condition, she says “it was a huge shock” & “rather intimidating”. Fortunately, she found out about Nerve Tumours UK and got in contact with one of our Specialist NF Nurses, who provided insight into her son’s condition and helped to alleviate some of her concerns.
“She was so knowledgeable, and I can’t describe the difference it made being able to pick up the phone and just talk and get advice. And the charity does so so much more than just that”
Laura has surpassed her target of 26.5 miles by more than 13.5 miles, completing a total of 41 miles in 10 runs over January!
The next step –
Laura is taking things even further and has organised an ‘Hour of Power’ online fitness fundraiser with Turner Fitness on the 14th of February, with the theme of ‘Love Yourself’ to coincide with Valentine’s Day. Anyone who joins the class can donate and 100% of the money raised will support Laura’s virtual marathon challenge.
If that wasn’t already enough, Laura has decided to match in miles the total amount of money raised in her marathon fundraiser. That means if she raises £500, she will be running 500 miles! Any donations made to her fundraiser from the 15th to 1st of March will mean she will match them by running even more miles. Go, Laura!
You can support Laura on her running challenge below.
Filter News
Milton Keynes NF1 Medical Information Day 2026
Register for our Milton Keynes NF1 Medical Information Day on 9 May 2026
Read More
Rare Disease Day 2026: Equity for Rare
A look back on Rare Disease Day: Equity for Rare, 28 February 2026.
Read More
Melanie’s Ironman challenge
Melanie reflects on her journey to complete Ironman Copenhagen, in memory of her cousin Ben who had NF1
Read More
Fyling Fest Fundraiser
Fyling Fest 2025: Sunshine, music & a whole lot of heart in the Rose Garden - all in support of Bea
Read More
Bea’s Story: Courage and Resilience
Bea, 'Bringer of Joy', never stops smiling despite her condition & NF1 related complications - read her story
Read More
Margaret’s Story
Margaret reflects on life with NF and her involvement with the charity since its early days
Read More
Repurposing anti-retroviral drugs to treat NF2 related tumours Retreat Study
Join a brand new study treating tumours in NF2 patients.
Read More
Raising Awareness Georgia’s Blog
My name is Georgia Baum, I’m 25 years old and an Ambassador for Nerve Tumours UK. Read my Blog and follow my journey!
Read More