Join the Butterfly Run
08 August 2019
Join the Butterfly Run
London 22 September 2019 Queen Elizabeth Olympic Park
WHAT IS THE BUTTERFLY RUN?
For the second year running, Cure EB will be hosting Butterfly Run London encouraging people of all abilities to take part and challenge themselves to run, walk, wheel, whatever you can do, to complete a 1k, 5k or 10k race. A celebration of inclusivity taking place at the Queen Elizabeth Olympic Park London. Support Nerve Tumours UK and Cure EB (Epidermolysis Bullosa) The event is open to all ages and abilities and part of a family fun day with races and entertainment for everyone including face painting, balloon modelling, sack races and much more.
INDIVIDUAL SIGN UP
• Single adult runner 5K or 10K £25 1K £10
• Child runner £10
• Family runners 1K (2 adults, 2 children) £40
• Family runners 5k (2 adults, 2 children) £65
• Under 5’s free
The Butterfly Run is hosted by Cure EB
Nerve Tumours UK support the cause of Cure EB and gets involved for the first time this year. By sponsoring us, you will help support the more than 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis, and help raise much-needed awareness of these conditions. Do let us know if you signed up by emailing to info@nervetumours.org.uk We are happy to give you a free T-shirt and support your fundraiser.
Filter News
The Scottish Parliament Rare Disease Day Online Reception 15/03/2023
NTUK attended the Scottish Parliament Rare Disease Day online reception
Read MoreLiz’s NF1 story: This is the real me
Liz describes growing up with NF1, difficulties at school, spinal surgery and raising awareness by writing a poem about NF.
Read MoreSupport Derry’s and Dan’s Marathon Run for NTUK
Dan and Derry will be taking on the London Marathon in support of Nerve Tumours UK
Read MoreRagbir’s London Marathon
Ragbir is the Paediatric Lead for NF1 in Leeds and is running the London Marathon
Read MoreRare Disease Day 2023
NTUK joined in with Rare Disease Day 2023, helping raise awareness of how better coordination of care can improve lives.
Read MoreAshley’s NF1 story
Ashley loves red pandas, he's a 32 year old IT Specialist and has NF1. He is running a half marathon to raise NF awareness
Read MoreGuy’s & St.Thomas’s Monthly Care Awards
NF paediatric nursing team, Mandy and Katrina win the Guy’s and St Thomas’ Hospital November CARE Award 2022
Read MoreCost of Living Crisis - Initiative
NTUK have co-signed an open letter to the Chancellor of the Exchequer on the cost of living
Read More