Join the Butterfly Run

08 August 2019

Join the Butterfly Run

London 22 September 2019 Queen Elizabeth Olympic Park

WHAT IS THE BUTTERFLY RUN?

For the second year running, Cure EB will be hosting Butterfly Run London encouraging people of all abilities to take part and challenge themselves to run, walk, wheel, whatever you can do, to complete a 1k, 5k or 10k race. A celebration of inclusivity taking place at the Queen Elizabeth Olympic Park London. Support Nerve Tumours UK and Cure EB (Epidermolysis Bullosa) The event is open to all ages and abilities and part of a family fun day with races and entertainment for everyone including face painting, balloon modelling, sack races and much more.

INDIVIDUAL SIGN UP

• Single adult runner 5K or 10K £25 1K £10

• Child runner £10

• Family runners 1K (2 adults, 2 children) £40

• Family runners 5k (2 adults, 2 children) £65

• Under 5’s free

The Butterfly Run is hosted by Cure EB

Nerve Tumours UK support the cause of Cure EB and gets involved for the first time this year. By sponsoring us, you will help support the more than 26,500 people in the UK who have Neurofibromatosis (NF1 and NF2) and Schwannomatosis, and help raise much-needed awareness of these conditions. Do let us know if you signed up by emailing to info@nervetumours.org.uk We are happy to give you a free T-shirt and support your fundraiser.

Set up your fundraiser

Tom GK- Hearing Loss: The Musical

Find out more about the musical and how you can secure your ticket here

Nurse’s Conference 2019

Find out more about this year's conference with our Nurses here:

Nerve Tumours UK joins the “Embracing Complexity” Coalition

Find out more about the coalition we have decided to join

Researching NF1

Rory Deasy has conducted research into the treatment of children with NF1. Here he talks about his research journey.

Megan’s Journey

Megan talks about her experiences of being a student with NF and what she took away from the NF conference in San Fransico

Aldo goes to Primary School

Find out more about the book aimed at helping people understand the life of an autistic boy going through primary school here

Eva’s Races

Eva has run 3 races over the past year for NTUK, find out what has been motivating her here:

Carl’s Story in memory of his sister who had NF2

Carl recently hosted his own wrestling event in memory of his late sister, find out more on his story here:

NTUK Dolphins at the Swim Serpentine 2019

Find out more about the incredible day for all involved at Hyde Park here:

Join the Butterfly Run