Grace’s NF1 story - Nothing stops me

10 January 2022

My name is Grace, I am 18 years old. I was diagnosed with Neurofibromatosis Type 1 when I was 2 years old.

For me it has resulted in a few complications, such as an optic nerve glioma, scoliosis of the spine, café au lait marks and neurofibromas.

I had 18 months of chemotherapy to shrink the tumour behind my left eye, which unfortunately left me blind on that side. I’ve been in and out of hospital a lot over the years, with many MRI scans and appointments, but I’ve never let this stop me from doing anything.

Growing up, I was always active and had a love for swimming and triathlon. Due to my visual impairment, I was able to compete in the para category in my local triathlon club events and swimming galas.

My biggest accomplishment within sport was when I competed in the British Blind Sport National swimming championships in Birmingham, collecting a series of gold and silver medals over the years.

I am currently in my first year at university studying Health and Social which I hope will lead me into a career in which I can care for people, as I know personally how important the health and social care sector is and what a difference it can make.

Runderpants Winchester 2020

Winchester Student Union RAG are taking on the Runderpants Mile, our unique fun run in your undies!

A Magical Weekend

Blackpool Magic Convention 2020 supports Nerve Tumours UK this year as it's chosen charity

The Littlewood’s Wedding Show for NTUK

Find out more about the amazing fundraiser here:

Becky’s Story

From dealing with her family's NF1 to improving her fitness and running marathons, have a read of Becky's amazing story here:

Beth’s “Novaspers Online Dog Show”

Find out more about Beth's online dog show here:

“Charity Shave Off” for NF in Northern Ireland

Janice and her family recently held a charity shave off in Northern Ireland. Find out more about the event here:

Blackpool Magic Convention 2020

Find out more about the convention in aid of NTUK and how you can get involved here:

Reflections on 2019

Check out our reflection on what we feel was an incredibly succesful 2019 for the charity:

Helen’s Story as told by her Mum Pauline

Due to her NF1, Helen has faced several struggles. Mum Pauline has openly shared her daughter's experiences with us here:

Grace’s NF1 story - Nothing stops me

My name is Grace, I am 18 years old. I was diagnosed with Neurofibromatosis Type 1 when I was 2 years old.

Growing up, I was always active and had a love for swimming and triathlon. Due to my visual impairment, I was able to compete in the para category in my local triathlon club events and swimming galas.

My biggest accomplishment within sport was when I competed in the British Blind Sport National swimming championships in Birmingham, collecting a series of gold and silver medals over the years.