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“Going dry in January” for NF

27 February 2020

"Going dry in January" for NF

Janet Holloway (left) and her friend Val Goeghegan (right) decided to challenge themselves this year to complete dry January so they can help to raise awareness and funds for those affected with Nerve Tumours.

Val's son Darren Cooper generously sponsored both of them and upon successful completion of an alcohol free month Darren presented both Janet & Val with a valuable donation. 

Janet and Val donated to their local hospice the Countess of Brecknock Hospice in Andover, Hampshire a specialist palliative care unit. 

The other part raised they very graciously donated to Nerve Tumours UK. Janet herself suffers with Neurofibromatosis type 1 and wanted to help others diagnosed with the condition with her amazing fundraising efforts. 

 

 

We would like to congratulate Janet & Val for completing "Dry January" and to say a big thank you to both of you for raising the wonderful amount. Cheers for February!

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Callum Axford’s Story

Vote for Callum's nomination for Positive Role Model (Disability) in this years National Diversity Awards!!

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The results are in for our Nerve Tumours UK film nominated at the Rare diseases film festival!

Check out our film & view the results from the film festival here:

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Noah’s Inspirational Fundraising Story

Noah Herniman, 14, raises over 1,000 Easter eggs for charity

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“Going dry in January” for NF

Janet Holloway and Val Goeghegan complete dry January for Nerve Tumours UK

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Runderpants Winchester 2020

Winchester Student Union RAG are taking on the Runderpants Mile, our unique fun run in your undies!

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A Magical Weekend

Blackpool Magic Convention 2020 supports Nerve Tumours UK this year as it's chosen charity

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The Littlewood’s Wedding Show for NTUK

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Becky’s Story

From dealing with her family's NF1 to improving her fitness and running marathons, have a read of Becky's amazing story here:

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Beth’s “Novaspers Online Dog Show”

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“Charity Shave Off” for NF in Northern Ireland

Janice and her family recently held a charity shave off in Northern Ireland. Find out more about the event here:

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All Aboard the Blatchington Branch Fundraiser for NTUK!

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ICAEW Worcestershire Annual Dinner and Ball Fundraiser for NTUK

The ICAEW Worcestershire Annual Dinner and Ball raised an incredible amount for us this year! Find out more here:

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

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Understanding  the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

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Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France

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Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

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Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK