Helpline 07939 046 030

First Specialist Neurofibromatosis (NF) Nurse for Wales

06 January 2021

Nerve Tumours UK are delighted to announce their first ever Specialist Neurofibromatosis (NF) Nurse for Wales, to be based at the University Hospital in Cardiff.

Helen Swann will have a very wide remit, covering the whole of Wales, but will work closely with the charity’s Specialist NF Nurse, who is based in Liverpool, and already sees many patients from the North part of Wales.

Helen qualified as a registered general nurse in 1985 and then moved into midwifery for 16 years before becoming a health visitor in 2006. She has nursed, supported and educated families and children with a diverse range of illnesses and conditions in hospital and in the community throughout her career, seeking to initiate change and improve health wherever possible. To further complement this, she has also completed an MSc, which involved an in-depth study of children’s developmental assessments.

Are you, or is anyone you know in Wales affected by Neurofibromatosis, in need of the service and wish to contact Helen. If so please register here:  

Karen Cockburn, Charity Director, Nerve Tumours UK, said,

“I am absolutely delighted to welcome Helen to the team. This has taken several years of negotiation and organisation, and I would like to offer my gratitude to The Morrisons Foundation, who are sponsoring this post, and to Professor Jean White, the Chief Nursing Officer for the Welsh Government, who has been instrumental in helping to get this proposal up and running, as well as The University Hospital for agreeing to house the post. I now hope the people of Wales will receive the support they both deserve and need.”

Helen will start working with Jennifer Gardner, Consultant Geneticist at the University Hospital, from January 2021, to enhance and expand the support network for families and patients with Neurofibromatosis throughout Wales.

Helen will join a UK wide network of Specialist NF Nurses who are based within NHS trusts. Nerve Tumours UK funds a network of now 10 nurses in position across the country. Demand for our services has increased dramatically over the years and specifically since the onset of Covid-19. Further escalation is anticipated post lockdown due to increases in both loneliness and poverty having an effect on general and mental health. We are immensely proud to provide this support and service in Wales. The importance and value of the network is demonstrated every single day in the unique work of the team with individuals, families, medics, schools, other voluntary organisations and a wide range of other associated professionals to improve the every day of those affected with NF.

Filter News

Filter by Date
Category
Reset

Nicole’s NF1 story & skydive

Nicole shares her NF1 journey and her motivation to inspire children with disabilities to achieve whatever they want to do

Read More

Sarah’s NF1 story & Langmead fundraising

Sarah describes her daughter Hannah's NF1 journey and organising a corporate charity day fundraiser at Langmead Herbs

Read More

Study - Resilient Youth with NF

Adolescents with NF (12-17 years old) are wanted for an Online Harvard research project

Read More

CAR Relationships study

CAR survey: support materials for adults with appearance-affecting conditions, focussed on intimacy & romantic relationships

Read More

Glasgow Comedy Night

Last night was the turn of Glasgow's The Stand Comedy Club to host the NTUK Comedy Circuit 2022

Read More

Newcastle Comedy Night

The Stand Comedy Club in Newcastle held a great night of fun and laughter

Read More

Nerve Tumours UK Lottery

Read how the NTUK Lottery helps make a difference to the NF Community

Read More

Manchester Comedy Night

Manchester's Frog & Bucket Comedy Club hosted the 2nd date on the NTUK 2022 comedy circuit

Read More

Call for evidence for new 10-year plan to improve mental health

The government has committed to develop a new cross-government, 10-year plan for mental health and wellbeing

Read More