Face Equality Week 2020
19 May 2020
What is Face Equality Week?
Face Equality Week is the UK’s only campaign to ensure that everyone is treated fairly and equally whatever the appearance of their face or body. It’s a special time of celebration and action, which champions our community, gives a voice to more people with a visible difference, and changes people’s perceptions.
When is Face Equality Week 2020?
We are delighted to announce that Face Equality Week 2020 will be taking place from 18 to 22 May, with Face Equality Day on Wednesday 20 May.
What’s planned for Face Equality Week 2020?
Our theme this year focuses on representation, ensuring people with a visible difference are seen and heard during this time of crisis. From not being able to rely on usual support networks, to feeling anxious about how to manage with stares, comments and abuse once the lockdown eases, people with visible differences are facing unique challenges during this pandemic. That's why it's so important to share the stories and experiences of lockdown from our community, including hopes for the future. Join their Butterfly Challenge or check out their Wellbeing Support Pack and get active on
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Olivia’s Story
Olivia is an enthusiastic and determined young girl. Have a read of her inspiring story here!
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Nerve Tumours UK receives Lottery funding
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Durham University is looking for participants who look different due to their health complications. such as NF.
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A letter detailing the vision of our new chair, and the future of the charity.
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Following a major strategic review, the Neuro Foundation charity is now known as Nerve Tumours UK.
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Dr Shruti Garg is the first non-US resident to receive NF1 $555,000 research award.
Read MorePolly’s Story (as told by Mum Emily)
"Despite being on weekly chemotherapy she is a happy child and never fails to inspire us all"
Read MoreEDEN Study Progress Report
The EDEN study has enrolled 30 babies and toddlers to understand how infants with NF1 develop.
Read MoreElla’s story
Have a read of Ella's story here. An uphill battle which we know she will turn around!
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