Face Equality Week 2020
19 May 2020
What is Face Equality Week?
Face Equality Week is the UK’s only campaign to ensure that everyone is treated fairly and equally whatever the appearance of their face or body. It’s a special time of celebration and action, which champions our community, gives a voice to more people with a visible difference, and changes people’s perceptions.
When is Face Equality Week 2020?
We are delighted to announce that Face Equality Week 2020 will be taking place from 18 to 22 May, with Face Equality Day on Wednesday 20 May.

What’s planned for Face Equality Week 2020?
Our theme this year focuses on representation, ensuring people with a visible difference are seen and heard during this time of crisis. From not being able to rely on usual support networks, to feeling anxious about how to manage with stares, comments and abuse once the lockdown eases, people with visible differences are facing unique challenges during this pandemic. That's why it's so important to share the stories and experiences of lockdown from our community, including hopes for the future. Join their Butterfly Challenge or check out their Wellbeing Support Pack and get active on
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Expertise in Neurofibromatosis: Within Europe
Find out more about the spread of NF experts across Europe:
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New Gene Therapy at a World-Renowned Research Insitute
Find out more about the new gener therapy that both NTUK and NF2 Biosolutions are strongly supporting
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Deacons Marina’s fun filled fundraiser for NTUK
Find out more about the successful and well received fundraising event here:
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Live Wrestling in aid of Nerve Tumours UK!
Find out more about the brand new unique funraising event here:
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Talking about Neurofibromatosis A Guide for Teens
A new brochure aimed at helping teens with NF has been released by St Louis hospital. Find it here:
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Family Lives Charity
Find out more about the charity that is dedicated to supporting those in all aspects of family life
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All Aboard the Blatchington Branch Fundraiser for NTUK!
Find out more about the miniature railway that has raised money for NTUK
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Sharon’s Story
Sharon has recently applied to run the London Marathon for NTUK, here she tells us a bit more about her experiences with NF
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