Face Equality Week 2020
19 May 2020
What is Face Equality Week?
Face Equality Week is the UK’s only campaign to ensure that everyone is treated fairly and equally whatever the appearance of their face or body. It’s a special time of celebration and action, which champions our community, gives a voice to more people with a visible difference, and changes people’s perceptions.
When is Face Equality Week 2020?
We are delighted to announce that Face Equality Week 2020 will be taking place from 18 to 22 May, with Face Equality Day on Wednesday 20 May.

What’s planned for Face Equality Week 2020?
Our theme this year focuses on representation, ensuring people with a visible difference are seen and heard during this time of crisis. From not being able to rely on usual support networks, to feeling anxious about how to manage with stares, comments and abuse once the lockdown eases, people with visible differences are facing unique challenges during this pandemic. That's why it's so important to share the stories and experiences of lockdown from our community, including hopes for the future. Join their Butterfly Challenge or check out their Wellbeing Support Pack and get active on
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Working For The NF Community and Helping to Protect and Save The NHS
Coronavirus is impacting the NHS heavily including our Specialist NF Nurses; help us support them, find out how
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Leighton Linslade Rotary Club hosts Brains of Leighton Buzzard Quiz
Leighton Linslade Rotary Club hosts Quiz in aid of Neurofibromatosis type 2, find out more here
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Postponed: Medicine and Me: Living with Nerve Tumours at the Royal Society of Medicine
Postponed: Find out more about the event at the Medicine & Me event at the Royal Society of Medicine here:
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NF1 Teenager Support Day!
Bridie Windsor is a Deputy Clinical Nurse Specialist who has organised a support day for teenagers with NF1. Read more here:
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Callum Axford’s Story
Vote for Callum's nomination for Positive Role Model (Disability) in this years National Diversity Awards!!
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The results are in for our Nerve Tumours UK film nominated at the Rare diseases film festival!
Check out our film & view the results from the film festival here:
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Noah’s Inspirational Fundraising Story
Noah Herniman, 14, raises over 1,000 Easter eggs for charity
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“Going dry in January” for NF
Janet Holloway and Val Goeghegan complete dry January for Nerve Tumours UK
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