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Expertise in Neurofibromatosis: Within Europe

07 August 2019

Expertise in Neurofibromatosis: Within Europe

Expertscape ( an independent directory dedicated to helping find the top rated professionals and the best areas for care for numerous conditions) has detailed out the relative number of NF expertise by both Country, Region, City, Number of Institutions and Expert rankings within the whole of Europe. This has been based on 1,407 articles published since 2008. 

We are proud to announce that the UK is leading the way in Neurofibromatosis expertise with both London and Manchester heavily contributing towards the number of experts and research surrounding NF.

Professor Gareth Evans also tops the list as the top rated NF expert in the whole of Europe with our own Professor Rosalie Ferner coming in 3rd! 

Other experts listed and involved in UK treatment and  support to those who have NF are  Doctor Sue Huson, Professor Meena Upadhyaya, Professor Oliver Hanemann and Professor Andrew King. All of these are acitve on our Medical Advisory Board. 

For the complete list make sure to click on the link below: 

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Professor Gareth Evans

Professor Rosalie Ferner

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Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

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Gareth Evans, MD, University of Manchester, UK

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David Pang, MD, ChB. Guys and St Thomas' Hospital NHS Trust, London

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Said Farschtschi, MD, University Medical Center, Hamburg-Eppendorf, Germany

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Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

Prof. Ellen Denayer, University Hospital of Leuven, Belgium

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Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

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Rianne Oostenbrink, MD, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

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Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium

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Sirkku Peltonen MD, PhD. University of Gothenberg, Sweden. Professor of Dermatology

INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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