Helpline 07939 046 030

European Neurofibromatosis Meeting 2020

26 November 2020

This year's meeting is to be virtual, and so you are invited to join the public day, Saturday 12 December.

"This day is meant for people with NF and their parents/caretakers from a social perspective, but also health care professionals, paramedics and all interested in NF. The importance of the ‘Public Day’ comes from the complexity of conditions related to NF, unknown and misunderstood, with difficulty to inform on developments in NF."

 

The registration fee is €25.00  

The European NF meeting is a key platform for established as well as starting professionals in NF research and clinical care. Health professionals, researchers and patients from all over the world, including members of the Nerve Tumours UK Medical Advisory Board: Professor Gareth Evans, Chair; Professor Rosalie Ferner, and Dr Shruti Garg will join the online conference and exchange knowledge and ideas and establish new collaborations. Bringing together all different disciplines involved in NF research and care, the European NF meeting offers a forum for advancing basic, translational and clinical research in NF and related fields, with one purpose: to improve the quality of life of NF patients. 

Prof Gareth Evans

Prof Rosalie Ferner

Dr Shruti Garg --

The 19th European Neurofibromatosis meeting is organized by the Erasmus MC national NF1 Expertise (ENCORE) and the patient organization for neurofibromatosis in the Netherlands (NFVN).

Filter News

Filter by Date
Category
Reset

The International Rare Disease Showcase 1st – 3rd February 2022

The International Showcase is a unique & important event, with interactive sessions taking place from 1st-3rd February 2022

Read More

Grace’s NF1 story - Nothing stops me

Grace tells us how her NF1 hasn't stopped her from being active and achieving her goals

Read More

Mia’s NF1 story

Bridie & Warren describe their 17 month old daughter Mia's diagnosis with NF1

Read More

Richard & Diana’s 1,000,000 metre new rowing challenge

Diana & Richard have taken on a 1,000,000 metre rowing challenge in 100 days to raise funds & awareness

Read More

A Message from our Charity Director

A message from Karen, our Charity Director, on looking forward to a special 2022

Read More

Childhood Neurological Conditions Survey Part 2

Find out how you can help shape the future of treatment for Childhood Neurological Conditions such as Neurofibromatosis

Read More

Study - Resilient Youth with NF

Online Harvard Study for 12-17 year olds

Read More

Owen’s Ball 2021

The Owen Family held their annual black tie fundraiser for NTUK

Read More

Graham’s Super Nine Shines A Light on NF

Graham's 7 year old great-nephew Nathan is his inspiration for his epic challenges to fundraise for NTUK

Read More