DrugStar Pearl Kelly
07 January 2021
Pearl from Liverpool, who has NF1, amongst a variety of other complex conditions, is one of our many active fundraisers and supporters within our NF community. She receives treatment for her NF at St. Mary’s Hospital in Manchester and is often visiting specialists around the region for her other conditions. When we asked our community to sign up to use the DrugStar App, Pearl gladly joined.
With every medication she took, she gained one Star, this meant a 1p donation for Nerve Tumours UK, which over a year culminated to a significant amount
![](/images/common/drugstar_1024x768.jpg)
Pearl is a huge Everton fan! She knows the team & Chairman, both of whom who supported her by buying her an electric wheelchair.
"Thank you to the chairman, Bill Kenwright and Leighton Baines of the Everton Football Club for supporting me, those affected by Neurofibromatosis in the UK, and integrating me into the Everton team as half-pint! Keep kicking!"
![](/images/made/images/common/Leighton_Baines__Bill_Kenwright_(Chairman_of_Everton_Football_Club)__Pearl_Kelly_800_300_s_c1.jpg)
In her own words Pearl says: “I am close to bed-bound and this is a way I can still fundraise and give back. It does not cost me anything, I get reminders and I simply do not forget to take my medication”
Why not follow Pearl’s example and join Drugstars
Here is how this works
Simply download the app and when you purchase your regular medical prescription you earn rewards that can be exchanged as free donations. Select Nerve Tumours UK to donate your rewards to and we receive cash donations on your behalf.
Drugstars also has a patient forum where you can hear experiences from other patients just like you about the medication you are taking. More than 400,000 patients worldwide have reviewed their medications on DrugStars so you can hear what they think directly from the patients themselves on their forum below.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Picture1_370x280_800_600_s_c1.jpg)
Ashley’s NF1 story
Ashley loves red pandas, he's a 32 year old IT Specialist and has NF1. He is running a half marathon to raise NF awareness
Read More![](https://nervetumours.org.uk/images/made/images/common/Mandy__Katrina_370x280_800_600_s_c1.jpg)
Guy’s & St.Thomas’s Monthly Care Awards
NF paediatric nursing team, Mandy and Katrina win the Guy’s and St Thomas’ Hospital November CARE Award 2022
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK__gov_logos_370x280_800_600_s_c1.jpg)
Cost of Living Crisis - Initiative
NTUK have co-signed an open letter to the Chancellor of the Exchequer on the cost of living
Read More![](https://nervetumours.org.uk/images/made/images/common/Alexion_Open_Health_logo_cover_image_370x280_800_600_s_c1.jpg)
Living with NF1: psychological impact & experiences
Research: Understanding the reality of the NF1 journey from diagnosis to daily life, and the emotional impact it has
Read More![](https://nervetumours.org.uk/images/made/images/common/Kian_NF2_Blog_image_9_preview_800_600_s_c1.png)
Kian’s NF2 Blog
Kian shares his NF2 journey and his inspirational path - training to swim in the para-olympics
Read More![](https://nervetumours.org.uk/images/made/images/common/Union_Chapel_cover_370x280_800_600_s_c1.jpg)
Union Chapel London Comedy night
Check out these superb photos from our final comedy night of the year
Read More![](https://nervetumours.org.uk/images/made/images/common/Joanna_ringing_bell_370x280_800_600_s_c1.jpg)
Joanna’s story
Joanna highlights the importance of women with NF1 receiving mammograms, and being able to train for the 2023 London Marathon
Read More![](https://nervetumours.org.uk/images/made/images/common/Nottingham_University_logo_370x280_800_600_s_c1.jpg)
Mobile Device Usage by Young Children with Special Educational Needs (SEN) or Disabilities in Their Home
Research: exploring current use of mobile devices in the home - parents' perspectives & experiences
Read More