Dexter’s NF Documentary Project
25 May 2021
Dexter, who has Neurofibromatosis Type 1, is currently studying Film and Media at Ravensbourne University, London. Dexter is the first person in his family with NF, with neither of his parents having it. First diagnosed as a child he spent a lot of time growing up being self-conscious about his NF but has since learned that; we are all different and we should show our differences proudly.
Dexter's documentary project called on members of the NF community to share their daily experiences of living with Neurofibromatosis. Living with the condition himself, he wanted to focus on exactly how people are affected, getting people to open up about the condition so that people can understand the impacts in greater detail and on a more personal level. The documentary is now live and can be viewed below.
The documentary’s theme is ‘Identity & Disability. Diving deep into the truths of disability and the perception of disabilities, as at times disabilities can be generalised as well as misunderstood.
– Dexter"I would also like the focus to steer towards what it really means to have NF, as each person with NF will have a different story. My target audience is teens to young adults with NF, as they may be more self-conscious about who they are as a person. This documentary would hopefully allow them to feel more comfortable in their skin. My target audience will widen to the general public, as especially now during the lockdown, more people are engaging with unknown subjects. This documentary will hopefully be interesting to those viewers who are not only interested in NF but also want to understand and learn more about a different topic, such as Neurofibromatosis."
NTUK supports Dexter in this project as part of our Shine A Light Campaign 2021 "Support the NF Community Make Their Voices Heard in a Changing World"
Please like, comment, and share Dexter’s insightful and honest work with other members of our NF community.
Nerve Tumours UK is not responsible for any data collection or content of the project.
Filter News

One More Nurse Appeal Press Release
Have a read of our #OneMoreNurse appeal press release here:
Read More
Recent Research from DR Shruti Garg
Find out more about some of the recent research carried out by DR Shruti Garag
Read More
Advisory group of parents needed to help shape future research
Maia Thornton is a PhD student looking for an advisory group of parents who's child has an appearance altering condition
Read More
Olivia’s Story
Olivia is an enthusiastic and determined young girl. Have a read of her inspiring story here!
Read More
The Big Lottery Fund pays for 2 Patient Info Days
Nerve Tumours UK receives Lottery funding
Read More
New research into non-discrimination law
Durham University is looking for participants who look different due to their health complications. such as NF.
Read More
Letter from our new Chair
A letter detailing the vision of our new chair, and the future of the charity.
Read More
Launch of Nerve Tumours UK
Following a major strategic review, the Neuro Foundation charity is now known as Nerve Tumours UK.
Read More
NF1 research award first for UK consultant
Dr Shruti Garg is the first non-US resident to receive NF1 $555,000 research award.
Read More