Dexter’s NF Documentary Project
25 May 2021
Dexter, who has Neurofibromatosis Type 1, is currently studying Film and Media at Ravensbourne University, London. Dexter is the first person in his family with NF, with neither of his parents having it. First diagnosed as a child he spent a lot of time growing up being self-conscious about his NF but has since learned that; we are all different and we should show our differences proudly.
Dexter's documentary project called on members of the NF community to share their daily experiences of living with Neurofibromatosis. Living with the condition himself, he wanted to focus on exactly how people are affected, getting people to open up about the condition so that people can understand the impacts in greater detail and on a more personal level. The documentary is now live and can be viewed below.
The documentary’s theme is ‘Identity & Disability. Diving deep into the truths of disability and the perception of disabilities, as at times disabilities can be generalised as well as misunderstood.
– Dexter"I would also like the focus to steer towards what it really means to have NF, as each person with NF will have a different story. My target audience is teens to young adults with NF, as they may be more self-conscious about who they are as a person. This documentary would hopefully allow them to feel more comfortable in their skin. My target audience will widen to the general public, as especially now during the lockdown, more people are engaging with unknown subjects. This documentary will hopefully be interesting to those viewers who are not only interested in NF but also want to understand and learn more about a different topic, such as Neurofibromatosis."
NTUK supports Dexter in this project as part of our Shine A Light Campaign 2021 "Support the NF Community Make Their Voices Heard in a Changing World"
Please like, comment, and share Dexter’s insightful and honest work with other members of our NF community.
Nerve Tumours UK is not responsible for any data collection or content of the project.
Filter News

Mindful Parenting Study
Research study: Mindful Parenting Programme for parents or carers of children aged 4-16 living with a visible difference
Read More
Adam Buxton and some colleagues - NTUK Comedy Night
Join us at the Union Chapel, London on Thursday 24th November for the latest comedy night to celebrate 40 years of NTUK
Read More
We know 26, 500 people who need your help
To expand our Specialist Neurofibromatosis Network, we need to continue raising awareness of what we do
Read More
The New National Helpline
The National Helpline is expanding to Monday, Wednesday and Friday, from early October
Read More
London Marathon 2022
Congratulations to our 2022 London Marathon runners - thank you from the NTUK team
Read More
Hannah’s NF1 story
9 year old Hannah is running the Junior Great North Run, so other children with NF can also have access to doctors & nurses
Read More
Sam’s Marathon
Sam, our Specialist NF Nurse for Merseyside & the North West, is running the London Marathon - her very first Marathon!
Read More
NF Patients Community Day
The NF Patients Community Day is on Sunday 9th October 2022 - register to attend virtually
Read More