Dayna’s Story
12 August 2019
Dayna's Story
Shortly after I was born it was noticed that my eye kept bulging out after every nap I took. This led to a number of tests being carried out on myself which lead to my diagnosis of Neurofibromatosis Type 1, and also the identification of a brain tumour on my optic nerve. I was then treated with chemotherapy, in which I had to have a port fitted for the treatment.
Sadly, this reduced vision in my left eye and made me go blind in my right when I was only 2.
At 6 years old a tumour was found on my ankle and I had to have “neurofibromatosis specialist surgery”.
Then at 12 I was diagnosed with a brain tumour on the temporal lobe, which led to emergency surgery being needed, this severely affected my memory for a long time.
At the age of 17 I was then diagnosed with a tumour in my back which is currently being monitored by my specialists alongside the tumour that was found on my vagus nerve.
A further two complications from my NF1 is that I have developed both breathing and digestive problems as well.
I'm 20 and have had Neurofibromatosis type 1 since I was 2.
– Dayna"However, despite all this I still maintain all my ambitions and dreams, which I know I can achieve. One of these dreams is to help as many people with Neurofibromatosis as possible, and to possibly help with any further tests and research in the future. "
Filter News
World At Her Feet
Christina has wrtiten a blog partly about living with NF1 and partly about her travels. Find it here:
Read MoreArooj: The Fashion Blogger with NF
Arooj Aftab, 22, is an influencer, with NF1, who is known for her baggy fashion style
Read MoreNerve Tumours UK wins Movement for Good award
Find out more about the award and why we received it here:
Read MoreDayna’s Story
Despite suffering many set backs as a result of NF, Dayna still maintains all her ambitions in life. Read her story here:
Read MorePrudential Ride 2019
Thank you so much to all our Prudential Ride 2019 riders! Find out more, including some fantastic photos, here:
Read MoreExpertise in Neurofibromatosis: Within Europe
Find out more about the spread of NF experts across Europe:
Read MoreNew Gene Therapy at a World-Renowned Research Insitute
Find out more about the new gener therapy that both NTUK and NF2 Biosolutions are strongly supporting
Read MoreDeacons Marina’s fun filled fundraiser for NTUK
Find out more about the successful and well received fundraising event here:
Read More