Dayna’s Story
12 August 2019
Dayna's Story
Shortly after I was born it was noticed that my eye kept bulging out after every nap I took. This led to a number of tests being carried out on myself which lead to my diagnosis of Neurofibromatosis Type 1, and also the identification of a brain tumour on my optic nerve. I was then treated with chemotherapy, in which I had to have a port fitted for the treatment.
Sadly, this reduced vision in my left eye and made me go blind in my right when I was only 2.
At 6 years old a tumour was found on my ankle and I had to have “neurofibromatosis specialist surgery”.
Then at 12 I was diagnosed with a brain tumour on the temporal lobe, which led to emergency surgery being needed, this severely affected my memory for a long time.
At the age of 17 I was then diagnosed with a tumour in my back which is currently being monitored by my specialists alongside the tumour that was found on my vagus nerve.
A further two complications from my NF1 is that I have developed both breathing and digestive problems as well.
I'm 20 and have had Neurofibromatosis type 1 since I was 2.
– Dayna"However, despite all this I still maintain all my ambitions and dreams, which I know I can achieve. One of these dreams is to help as many people with Neurofibromatosis as possible, and to possibly help with any further tests and research in the future. "
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Challenge_Yourself_FB_preview_800_600_s_c1.jpg)
Nerve Tumours UK Challenge Yourself Week
Find out how you can get involved this summer with some of the biggest and greatest challenge events in the UK
Read More![](https://nervetumours.org.uk/images/made/images/common/Andrew_Baum_Image_370x280_800_600_s_c1.jpg)
Andrew’s NF1 Story
Read about Andrews inspirational NF1 story and how he wants to inspire others to achieve their goals!
Read More![](https://nervetumours.org.uk/images/made/images/common/Dexter_Parker_Documentary_-_Youtube_cover_370x280_800_600_s_c1.jpg)
Dexter’s NF Documentary Project
Dexter shares his motivations for taking on his NF documentary project & find out how you can watch it
Read More![](https://nervetumours.org.uk/images/made/images/common/Emily_370x280_800_600_s_c1.jpg)
World NF2 Day 2021 Emily Owen Member of our Board of Trustees Takes over our social
Read More![](https://nervetumours.org.uk/images/made/images/common/Hettie_Sale_Strollers_-_Garden_Challenge_370x280_800_600_s_c1.jpg)
A Big Thank You to all our Garden Runners!
Find out how our Garden Runners got on this World Neurofibromatosis Awareness Day - May 17 2021
Read More![](https://nervetumours.org.uk/images/made/images/common/Advert_English_370x280_800_600_s_c1.jpg)
Centre for Appearance Research (CAR) - Somali Heritage & NF Study
If you are from Somali heritage and have NF, the Centre for Appearance Research (CAR) want to hear from you.
Read More![](https://nervetumours.org.uk/images/made/images/common/Alice__Markus_at_National_Theatre_Shine_A_Light_Blue_2021_370x280_800_600_s_c1.jpg)
Shine A Light 2021 Success!
Another incredible year, 92 buildings lighting up blue to Shine a Light on Neurofibromatosis as part of this year’s campaign
Read More![](https://nervetumours.org.uk/images/made/images/common/Patrick_Smith_Image_1_370x280_preview_800_600_s_c1.jpg)
Living Different: Patricks’s NF2 Blog
Read his attempt to build people's understanding of the challenges with disabilities
Read More![](https://nervetumours.org.uk/images/made/images/common/Beths_Dog_Show_2021_-_preview_800_600_s_c1.jpg)
Beth’s Novasper Online Dog Show 2021
Find out how you can get involved in this year's fluffiest and loveable online dog show!
Read More