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#DareToThinkRare

21 October 2020

The Student Voice Prize
is now OPEN!

To those in our community that are medical students, trainee nurses, or know someone amongst your family and friends. Enter #DareToThinkRare for the 7th annual Student Voice Prize essay competition!

What is The Student Voice Prize?

The Student Voice Prize is an annual, international essay competition that focuses on raising the profile of rare disease within the medical field, particularly with medical students, nurses, and scientists, who may have never come across rare diseases in their training.

Findacure and Medics4RareDiseases host the competition together and the winner gets published in The Orphanet Journal of Rare Diseases!

 

Why Rare Disease?

Rare diseases affect approximately 350 million people worldwide and are some of the most difficult conditions to diagnose. Despite the large number of people affected around the world, little time is dedicated to rare disease training in medical school. It is why The Student Voice Prize challenges the doctors, nurses, and scientists of tomorrow to think about rare disease today. After all with a lifetime risk of 1 in 17 in the UK, it’s not rare to come across them! 

 

Prizes

The 2020 Prizes include:

  •    Publication in one of the world’s most widely read scientific journals
  •    Speaking engagements
  •     Free trip to scientific conferences with all travel expenses paid*
  •     Become an advocate for rare disease 
  •     Money

 

Who Can Enter?

If you fall under any of the following categories, you can enter The Student Voice Prize essay competition!

  • Medical students
  • Trainee nurses
  • Undergraduate and masters students enrolled in biological sciences studies (pharmacy, biology, genetics, biomedical science, pharmacology etc.)

 

Deadline for Entry is 9:00 am GMT on 16th November 2020 

Enter Here

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Callum Axford’s Story

Vote for Callum's nomination for Positive Role Model (Disability) in this years National Diversity Awards!!

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Check out our film & view the results from the film festival here:

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Beth’s “Novaspers Online Dog Show”

Find out more about Beth's online dog show here:

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Masterclasses in NF: NF1 Dermatological Manifestations

Pierre Wolkenstein, MD, PhD, Hopital Henri-Mondor, Paris, France

Laura Fertitta, MD, Hôpital Universitaire Henri Mondor

Sirkku Peltonen, MD, PhD, University of Gothenberg, Sweden

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Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches

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Masterclasses in NF: NF1 Pre-Implantation Genetic Diagnosis

Eric Legius, MD, PHD, University Hospital of Leuven, Belgium

Prof. Ellen Denayer, University Hospital of Leuven, Belgium

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NF1 Working Together Part 2: from a tentative diagnosis and beyond

Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

NF1 Working Together Part 1: from a tentative diagnosis and beyond

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Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

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Michel Kalamarides, MD, PhD, Hôpital Pitié-Salpêtrière, Paris, France

Prof Andrew King, MBBS FRCS FRCS(SN), Salford Royal Hospital, Manchester, United Kingdom. Member of the MAB of Nerve Tumours UK

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Dr Shruti Garg, MBBS, MRCPsych, MMedSci, PhD, Royal Manchester Children’s Hospital, United Kingdom. Member of the MAB of Nerve Tumours UK

Andre Rietman, PhD, Erasmus University Medical Center, Rotterdam, Netherlands

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Masterclasses in NF: Emotional Challenges in NF1, NF2 and Schwannomatosis

Susie Henley, DClinPsy, PhD, Guy’s and St Thomas’ NHS Foundation Trust, London UK

Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

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Eric Legius, MD, PhD. Head of Clinical Genetics Department of the University Hospital Leuven, Belgium

Christophe Glorion, MD, PhD, Department of Paediatric Orthopedic and Traumatologic Surgery, Hopital Necker-Enfants Malades, Paris, France. 

Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours - Rosalie Ferner and Viktor-Felix Mautner

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Viktor-Felix Mautner, MD, PhD. University Medical Centre in Hamburg-Eppendorf, Germany. Head of NF Outpatient Department

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Sirkku Peltonen MD, PhD. University of Gothenberg, Sweden. Professor of Dermatology

INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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Prof Rosalie Ferner, Consultant Neurologist and Lead Clinician for Neurofibromatosis, Guy's and St. Thomas' NHS Foundation Trust, London. Member of the MAB of Nerve Tumours UK and Trustee of Nerve Tumours UK