Coronavirus and your Mental Health
06 November 2020
If you are finding things hard emotionally right now, you are not alone. Mind provides information and support.
The coronavirus (Covid-19) pandemic is affecting all our lives. Many of us are struggling with how it is affecting ourselves and our loved ones. The current situation can take its toll on your mental wellbeing. All of us face changes in their day to day lives. These might include access to treatment, care, social life, being alone, issues due to the crisis at school or work, in short isolation, might have its impact on our Neurofibromatosis community. Realising any anxiety or increased pressure due to the situation can be dealt with and needs to be addressed. Mind has an array of resources that might help or point you in the right direction.
Here you'll find reliable information and tips to help you cope during this time.
If you have any further concerns or questions you can email us directly to info@nervetumour.org.uk or call our Helpline for medical and non-medical related queries 07939 046 030. You can discuss any issues confidentially with our Specialist Neurofibromatosis Nurses.
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My life with Pheo
This story, written by someone with NF1, describes symptoms leading to a phaeochromocytoma diagnosis
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Resources Survey: Initial Diagnosis 2023
We received many responses to our survey asking what would you have found helpful after your initial diagnosis
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Community Fundraising Call Out
Calling all community fundraisers - we need your help, please!
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Owen family Awareness Event
The event featured guest speaker Prof. Meena Upadhyaya OBE, Member of our Board of Trustees & Medical Advisory Board
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Running for Wilbur
Tim is running the Guildford 10k in October, to show support to his son Wilbur who has NF1
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Alice’s NF studies
Alice is researching healthcare experiences of individuals with NF1 for her Genetic & Genomic Counselling MSc
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Centre for Appearance Research - The Parenting Toolkit
Research evaluation to find out how effective ‘The Parenting Toolkit’ is at supporting parents of children with NF
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Celtic Crossing NTUK fundraiser
On Wednesday 28 June, a team of 8, led by Paul Aubery, paddled from the Isles of Scilly to Sennen Cove in Cornwall.
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NF Awareness Day Fundraiser at Fyling Hall School
Bea's school held a blue & green themed fundraiser on World NF Awareness Day
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